rebooting at JHH

A board to discuss Revimmune as a potential therapy for multiple sclerosis

Postby chrishasms » Sat May 17, 2008 1:42 pm

Every white blood cell you got is toast. B Cell, T Cell and if they exist in white blood -xyz cells lol.
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Postby Lyon » Sat May 17, 2008 3:36 pm

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Postby 777 » Sat May 17, 2008 3:51 pm

Lyon wrote:
mrhodes40 wrote:since we are on the subject, are the b cells killed in treatment as well? just curious.
Yes, all the white blood cells are killed in the process. T and B cells.
Bob


Is that a good thing? What is the importance of theT and B cells?
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Postby chrishasms » Sat May 17, 2008 4:15 pm

That is the cells MS lives in. By killing off those cells and letting your bone marrows' stem cells rebuild your immune system (AKA T- Cells and B-cells) without the bad influence of cells that think MS is OK, you now don't have MS.
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Postby Lyon » Sat May 17, 2008 4:26 pm

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Postby mrhodes40 » Sat May 17, 2008 5:35 pm

I asked because EBV lives in b cells forever once it has been contacted. Since a considerable amount of MS research seems to keep looking at that, I wondered if the EBV is gone as well and thought it might ossibly be another reason for effective therapy

My bias is that MS is probably not autoimmune--No don't argue with me, I realize some of us...Lyon....have good research to back up the other side but I still remain in the side of Behan and Chaudhuri

But taht doesn't mean something like this might not be very effective but for reasons other than we think. :D

I like it cause it seems to work in the small studies I saw (if you know more post on the research thread I started please) , it is not something with long term impact on your body, and I am all out of wait! EDSS 6, thank you very much, I have to do something and this seems pretty safe to me personally
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Postby Lyon » Sat May 17, 2008 5:44 pm

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Postby 777 » Sat May 17, 2008 6:19 pm

mrhodes40 wrote:I asked because EBV lives in b cells forever once it has been contacted. Since a considerable amount of MS research seems to keep looking at that, I wondered if the EBV is gone as well and thought it might ossibly be another reason for effective therapy

My bias is that MS is probably not autoimmune--No don't argue with me, I realize some of us...Lyon....have good research to back up the other side but I still remain in the side of Behan and Chaudhuri

But taht doesn't mean something like this might not be very effective but for reasons other than we think. :D

I like it cause it seems to work in the small studies I saw (if you know more post on the research thread I started please) , it is not something with long term impact on your body, and I am all out of wait! EDSS 6, thank you very much, I have to do something and this seems pretty safe to me personally
marie


whats stopping you? have you sent in your records to JH?
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Postby mrhodes40 » Sun May 18, 2008 12:21 pm

I am only just learning about this treatment! I am likely to go for it, it does not frighten me at all. I was much more worried about heart damage from novantrone or ongoing immunosppression from things like tysabri than I am about this approach.

Yes an EDSS 2 would be better we'd have to go back in time for that. My neuro (who just went to Stanford, so left my area) who was the director of a large Seattle MS clinic and who was running a tovaxin trial told me that the minority of patients have MRTC and that it is not going to be as useful as hoped because of that. He did not offer to let me in the trial, I am too "well controlled" on Copaxone and too far down the path. My "well controlled" is about my lovely MRIs...nary an inflammation insight, no brain atrophy at all, no new lesions. I just have this troubling little problem of deteriorating motor funciton. I did try to go off Cop and had an old fashioned exacerbation.

Those of you diagnosed in these days are fortunate, you have options I just did not.
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Postby robbie » Sun May 18, 2008 12:40 pm

Those of you diagnosed in these days are fortunate, you have options I just did not.
marie

yes
Had ms for over 19 years now.
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Postby Xenu » Sun May 25, 2008 10:37 am

Davis,

Thank you so much for keeping us posted. Please continue to do so.

Much Love,
V. :D
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Postby Jamie » Thu May 29, 2008 4:51 pm

You seem to have had it a lot harder with the counts than Mel.

I'm glad things have rebounded well though eventually.

You'll be tired for a long while yet but hopefully it's worth it.
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