Chris you posted same time as I, Yes Carrie sounded excited about the dual disease situation. Glad it makes someone happy!
Robbie I do not know what to say. I am just really sorry any of us has to have this disease. I can say the first 10 years were the worst. After that there is an acceptance of the fact the MS is real and it's there and you are not in control, though this does not mean you accept it without fighting!
I am an edss6 probably SPMS (though they are reluctant to say so...makes the meds harder to consider but it's really progressive) and I still hope to find a better medical management that works.
My ultimate solution is to float my way through the potentially too difficult days on a cloud of MJ. I feel comforted knowing I have a plan for that.
I got it at 30 I am now 47.
Honestly, the greatest hero in the greatest story ever has nothing on us. We are very brave every day we get up and face a day, every time we face our discomfort with our new appearance, every time we face our PT exercise program, put on a brace, attempt to do our own care even if we need help, every time we be kind or help another in spite of our situation, every time we have to cope with some bodily funciton that leaves us feeling dependant and helpless, and all the private hells we live in that the regular a"normal" world does not begin to fathom.
MS is OUR challenge. I try to say that I will just have to be brave and have courage, but sometimes I do not want to. Brave or not, it is here, so let's choose brave!
I do not know if this helps but thinking like this helps me cope.