Revimmune results

A board to discuss Revimmune as a potential therapy for multiple sclerosis
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bromley
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Revimmune results

Post by bromley »

Lyon
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Post by Lyon »

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Last edited by Lyon on Wed Jun 22, 2011 7:27 pm, edited 1 time in total.
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bromley
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Post by bromley »

Bob,

You're more bonkers than I thought. I can't see what you are on about.

I think you should start smoking again and getting back into your old ways of spending your evenings in sleazy lap-dancing clubs.


Ian
Lyon
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Post by Lyon »

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Last edited by Lyon on Wed Jun 22, 2011 7:27 pm, edited 1 time in total.
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ladystewart
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SPMS

Post by ladystewart »

OK-- I just got off the phone with Dr. Hammond and I was told that Revimmune is not very effective in people with SPMS. I am soooo finished now. I was diagnosed with RRMS and he said they are using RRMS patients. So if I had the treatment when diagnosed RRMS (2002) it would have been better?????????

I have to wait until I am peeing/shi---- on myself??? So I have a husband and 2 chidren and they suffer because I can do nothing now for them!! sorry---venting--UGH :evil:

GOD help. My mother had MS and I am worse. Been desling since I was 12 years old. Stemcell transplant?? :roll:
robbie
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Post by robbie »

I was told that Revimmune is not very effective in people with SPMS. I am soooo finished now. I was diagnosed with RRMS and he said they are using RRMS patients. So if I had the treatment when diagnosed RRMS (2002) it would have been better?????????
what a f$$king joke!
Had ms for 28 yrs,
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Lyon
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Last edited by Lyon on Mon Nov 28, 2011 1:29 pm, edited 2 times in total.
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ladystewart
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Post by ladystewart »

I think some who have had treatment, and doing well, were PPMS. I thought PPMS was worse than SPMS---I am thinking about email to send to JH...........

Shar----
Lyon
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Post by Lyon »

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Last edited by Lyon on Wed Jun 22, 2011 7:28 pm, edited 1 time in total.
robbie
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Post by robbie »

so there is 9 people with ms treated with Revimmune and they are saying that it won't be as affective with spms, how do they know that?
Had ms for 28 yrs,
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
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Jamie
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Post by Jamie »

There are a lot more than 9.

Just that study had 9.

There's a couple of hundred. Still not huge numbers admittedly.
robbie
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Post by robbie »

jamie how many total in this trial were spms?
Had ms for 28 yrs,
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Lyon
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Post by Lyon »

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Last edited by Lyon on Wed Jun 22, 2011 7:28 pm, edited 1 time in total.
robbie
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Post by robbie »

so there is 9 people with ms treated with Revimmune and they are saying that it won't be as affective with spms, how do they know that?
just say the trial at JH
Had ms for 28 yrs,
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
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ladystewart
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Post by ladystewart »

9 people at JH. 1 gets better--what if I am the 1. To me EVERYONE deals with medication differently. If Revimmune takes away my immune system then all will be gone. I was told to take the pulse of Cy---difference?? I agree that 'progressive' is 'progressive.
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