Revimmune results

A board to discuss Revimmune as a potential therapy for multiple sclerosis

Revimmune results

Postby bromley » Tue Jun 17, 2008 11:51 am

User avatar
bromley
Family Elder
 
Posts: 1887
Joined: Fri Sep 10, 2004 3:00 pm

Advertisement

Postby Lyon » Tue Jun 17, 2008 2:53 pm

..
Last edited by Lyon on Wed Jun 22, 2011 8:27 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby bromley » Wed Jun 18, 2008 5:06 am

Bob,

You're more bonkers than I thought. I can't see what you are on about.

I think you should start smoking again and getting back into your old ways of spending your evenings in sleazy lap-dancing clubs.


Ian
User avatar
bromley
Family Elder
 
Posts: 1887
Joined: Fri Sep 10, 2004 3:00 pm

Postby Lyon » Wed Jun 18, 2008 6:24 am

..
Last edited by Lyon on Wed Jun 22, 2011 8:27 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

SPMS

Postby ladystewart » Wed Jun 18, 2008 12:09 pm

OK-- I just got off the phone with Dr. Hammond and I was told that Revimmune is not very effective in people with SPMS. I am soooo finished now. I was diagnosed with RRMS and he said they are using RRMS patients. So if I had the treatment when diagnosed RRMS (2002) it would have been better?????????

I have to wait until I am peeing/shi---- on myself??? So I have a husband and 2 chidren and they suffer because I can do nothing now for them!! sorry---venting--UGH :evil:

GOD help. My mother had MS and I am worse. Been desling since I was 12 years old. Stemcell transplant?? :roll:
User avatar
ladystewart
Family Member
 
Posts: 46
Joined: Sat Jun 07, 2008 3:00 pm
Location: USA

Postby robbie » Wed Jun 18, 2008 1:25 pm

I was told that Revimmune is not very effective in people with SPMS. I am soooo finished now. I was diagnosed with RRMS and he said they are using RRMS patients. So if I had the treatment when diagnosed RRMS (2002) it would have been better?????????

what a f$$king joke!
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

.

Postby Lyon » Wed Jun 18, 2008 3:43 pm

.
Last edited by Lyon on Mon Nov 28, 2011 2:29 pm, edited 2 times in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby ladystewart » Wed Jun 18, 2008 4:39 pm

I think some who have had treatment, and doing well, were PPMS. I thought PPMS was worse than SPMS---I am thinking about email to send to JH...........

Shar----
User avatar
ladystewart
Family Member
 
Posts: 46
Joined: Sat Jun 07, 2008 3:00 pm
Location: USA

Postby Lyon » Wed Jun 18, 2008 5:15 pm

..
Last edited by Lyon on Wed Jun 22, 2011 8:28 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby robbie » Wed Jun 18, 2008 6:18 pm

so there is 9 people with ms treated with Revimmune and they are saying that it won't be as affective with spms, how do they know that?
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby Jamie » Wed Jun 18, 2008 6:33 pm

There are a lot more than 9.

Just that study had 9.

There's a couple of hundred. Still not huge numbers admittedly.
User avatar
Jamie
Family Elder
 
Posts: 596
Joined: Mon Jan 07, 2008 4:00 pm

Postby robbie » Wed Jun 18, 2008 6:41 pm

jamie how many total in this trial were spms?
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby Lyon » Wed Jun 18, 2008 7:18 pm

..
Last edited by Lyon on Wed Jun 22, 2011 8:28 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby robbie » Thu Jun 19, 2008 7:00 am

so there is 9 people with ms treated with Revimmune and they are saying that it won't be as affective with spms, how do they know that?
just say the trial at JH
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby ladystewart » Thu Jun 19, 2008 8:39 am

9 people at JH. 1 gets better--what if I am the 1. To me EVERYONE deals with medication differently. If Revimmune takes away my immune system then all will be gone. I was told to take the pulse of Cy---difference?? I agree that 'progressive' is 'progressive.
User avatar
ladystewart
Family Member
 
Posts: 46
Joined: Sat Jun 07, 2008 3:00 pm
Location: USA

Next

Return to Revimmune (cyclophosphamide or cytoxan)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users