chrishasms wrote:It's not my thread that says "not a sales pitch!"
The reason why you haven't heard them say it publicly is because the FDA won't let them.
As Jamie, and a few of the others who have had this will tell you, a few of those docs, like Dr. O'Donnel, will refer to it as that. The others smile from ear to ear and say, "Wait a couple of more years."
Until someone else shows me something that heals lesions and improves disability scores or shows me someone who has not experienced this same result from it I will not, I repeat, will not stop referring to this as a cure.
If my docs know I am doing it and they don't stop me why would I listen to someone who was just as sick as I was?
End of story
You are right, it was not your thread titled not a sales pitch but another person who is currently undergoing Revimmune therapy. I wonder why she felt the need to title her thread that way...could be b/c of your pitching Revimmune??? Just my two pennies.
Chris, it's not a cure but if you want to believe it. go right ahead. More power to you. Honestly. I am not trying to dissuade you. I, like you, am only trying to get the information out there that legally this is not yet been proven as a cure. If the JH docs are promoting this as a cure FOR MS, then they must know something that the rest of the world does not know. It's not the FDA that's stopping them, it's the facts.
The scientific world would not let them tout this as a cure for MS until they have proven it as such. Show me where they have? Show me the proof? Has there been enough data for 10 years to prove this a cure for MS? Where is the data? Where's the scientific proof? Just you? 1, 2, 3, 5 people for 2 years? That's not enough.
You say you don't want anything sugar coated, well neither do I. This darn disease is kicking my butt and has been since I was dx'd in 2001. Don't you think if this therapy had been available to me and "I qualified" for it, I would be doing it. He!! yes. But you know what...I don't. So stop trying to tell me I am not doing everything I can to treat MY disease MY way. I am ...
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford