You know, as far as your numbers being low, I'd seriously chalk that up to each person being different. You didn't get sick at all from the Cytoxan where I spent four days sick, semi-sedated and even wearing a diaper the last three! Ugh. Not a pleasant memory there! But on the flip side, my numbers were approaching normal when I left Baltimore. We're all a little different. But if it was Joyce who emailed you, I'd take her word to the bank. I was sooooo impressed by her. She is one sharp lady.
It's funny, I too miss Baltimore in that I stayed with family and it was great seeing them. I actually found the whole process at Hopkins to be fascinating despite how hard it was on me. I'll actually always be a bit nostalgic for it.
Keri I can't really say that I've had any real improvement at this point. I have a lot of spinal issues and that might not reverse. Fingers crossed but we'll see.
My hair loss was kind of weird. The day that I got re-admitted, which was just short of two weeks after the first dose, I woke up with hair all over the pillow. I went to IPOP and was shedding like a cat and by the time I was re-admitted that evening, they put towels on my bed over the pillow I was losing so much hair. My move gave me a buzz cut in the room the next day but didn't have a razor to take it down to the skin level. I woke up the next day and most of it on the top had fallen out but most of it on the back and a good bit of it on the sides stayed in. We went ahead and shaved it down with a razor to keep it uniform though. I ended up keeping some stuble on the top and a lot on the sides and back but none of is growing. I also haven't had to shave since my hair fell out. Janice from IPOP told me about six weeks after it fell out is a good rule of thumb for when to expect it to grow up. I'm still not used to the bald thing to the point it's annoying me. It's not even a vanity thing. I'm used to having very thick hair and I'm just not used to have this bald head!