From my understanding, being in a chair is at least a 6, and no symptoms is a zero. Are you really saying you went from 6 to 0? how long did that take?Kyle wrote:I had this for years and been in a chair and now have no symptoms.
Kyle wrote:I just think a lot of hype has been created here on this site. Because it's experimental and many neuro's wont support it AND it's offered at Johns Hopkins I think people saw this as a secret cure/treatment therefore making it better or special.
Kyle wrote:L wrote:...also, I meant to add in my last post that whilst thinking about patient number 3, the twenty seven year old man who went from EDSS 5 to 1 at 12 months and 3 at two years, we shouldn't forget patient number 4, a 46 year old woman who had had the diseases for 15 years and went from EDSS 5 to 0 in twelve months and was staying at zero at two years...
I went to from a 6.5 to a 0 2 times in my hx with MS. I have had 4 attacks, 2 leaving me in a chair and one time I was blind for a year as well. Both times it took me a full year to recover but today I am at EDSS 0 and feel great.
Point being, yes it can happen to anyone. First time I did go on an experimental treatment, I cant say for sure if it worked or not. To this day it's still controversial and not accepted, 2nd time, well maybe I just got lucky.
I have considered revimmune, but I think there are some new therapies using stem cells that look more promsing. Just have to wait and see. I understand when people are desperate to help themselves, I have been there many times. And I hope revimmune pans out but based on the original 9 patients, I cant say THIS is the therapy to have.
I just think a lot of hype has been created here on this site. Because it's experimental and many neuro's wont support it AND it's offered at Johns Hopkins I think people saw this as a secret cure/treatment therefore making it better or special.
Kyle wrote:You were the one threatening to sue the hotel you were at. You seem to have some general attitutude/anger issues.
Why am I here because my EDSS is a 0. I doubt it wil stay that way after 4 attacks, 2 being severe, my recovery from here on out might not be as has in the past. I like to keep my options open and not have to worry about any more attacks.
Don't like what I have to say then dont read it and move on. this is an open forum.
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