L wrote:
...also, I meant to add in my last post that whilst thinking about patient number 3, the twenty seven year old man who went from EDSS 5 to 1 at 12 months and 3 at two years, we shouldn't forget patient number 4, a 46 year old woman who had had the diseases for 15 years and went from EDSS 5 to 0 in twelve months and was staying at zero at two years...
I went to from a 6.5 to a 0 2 times in my hx with MS. I have had 4 attacks, 2 leaving me in a chair and one time I was blind for a year as well. Both times it took me a full year to recover but today I am at EDSS 0 and feel great.
Point being, yes it can happen to anyone. First time I did go on an experimental treatment, I cant say for sure if it worked or not. To this day it's still controversial and not accepted, 2nd time, well maybe I just got lucky.
I have considered revimmune, but I think there are some new therapies using stem cells that look more promsing. Just have to wait and see. I understand when people are desperate to help themselves, I have been there many times. And I hope revimmune pans out but based on the original 9 patients, I cant say THIS is the therapy to have.
I just think a lot of hype has been created here on this site. Because it's experimental and many neuro's wont support it AND it's offered at Johns Hopkins I think people saw this as a secret cure/treatment therefore making it better or special.
Maybe you should just not bother pursuing the treatment since you are now free of MS and perhaps avoid posting negative comments here. I understand now that you don't rate this treatment, and that you see other treatments as better options (for someone with no disability?) and just repeating the sentiment isn't getting us anywhere.
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