Me and my neuro. are not counting out Tysabri at all. He has also stated that he has had some pretty good stories about it. He has a couple of patients that were not walking and they are now. He always tells me that they may have been in the midst of an aggresive relapse and would have come out of it and got back on their feet anyway, but he's seen those patients stabilize after they get into about 6 infusions or so. The reason he wants to try Rituxan on me is that he says he thinks that fact that I've had this for over 7 years now, makes Tysabri a little less appealing. I'm not sure I fully understand the rationale there, but I think he is seeing what he wants to see with Tysabri more from patients who are newly diagnosed. Don't hold me to that, but that's what I've been thinking.
Who knows? The same reason I didn't qualify for Campath may exclude me from Rituxan, but it's not a trial, so I think it's up to him to prescribe, whereas the Campath would have been part of a trial. Now that my site is a mini MS clinic with MS nurses and everything, they are doing all the JC virus testing and all that, so I would not hesitate to start Tysabri if he says we can't do Rituxan for whatever reason. I just need something. The 'roids seemed to have stabilized me, but stable for me right now still sucks. I just can't walk very far at all and always need my cane now. I don't feel like I've slipped at all this week, and that's a very positive change. So I want some 'stuff' in me to keep this train 'a rollin'.