This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 25, 2013 11:05 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 6 posts ] 
Author Message
PostPosted: Fri Oct 24, 2008 5:07 pm 
Offline
Family Elder
User avatar

Joined: Sat Oct 20, 2007 3:00 pm
Posts: 946
Location: The United Kingdom
Hey all

Question for people who have undergone the treatment - what exactly are those four days like? I am interested to know. I have gained a bit of an idea from threads here on this forum but it's still a bit of a mystery to me. Is it unpleasant? Does the time fly by on account of the drugs? Do the anti emetics work well?

Thanks!


Top
 Profile  
 
 Post subject:
PostPosted: Sat Oct 25, 2008 5:00 pm 
Offline
Family Elder
User avatar

Joined: Mon Jan 07, 2008 4:00 pm
Posts: 596
Day 4 was hard for Mel, but she remembers little of the whole experience now.

The anti-puke shots keep you sleepy.

Some have it a lot worse though with the nausea and headaches, ask Chris!

I think they'll all tell you its worth it though.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Oct 25, 2008 5:12 pm 
Offline
Family Elder
User avatar

Joined: Sat Apr 26, 2008 3:00 pm
Posts: 153
Location: Los Angeles, CA
Well, for whatever it's worth...which isn't much I suppose since I'm an unusual person...

I didn't get sick at all! I didn't puke. I didn't get nauseous.

The 4 days was almost like a mini-vacation.... granted, being hooked up to the cath lines/IV was a pain in the a$$, but overall - I was blown away at how smooth it was.

I can't speak highly enough of the nurses on the HiCy floor. They were incredibly amazing.

My friends were with me - and we sat and watched movies, popped popcorn, took walks around the hospital. The night of Day 3 - I even ate a ton of fried, greasy, horrible food - I was tempting fate LOL. Still did not get sick. No one could believe at how well I did. I was certain there wasn't chemo in those IV bags....

I wish for everyone to have such a good experience!!

~Keri


Top
 Profile  
 
 Post subject:
PostPosted: Sun Oct 26, 2008 5:43 am 
Offline
Family Elder
User avatar

Joined: Sat Oct 20, 2007 3:00 pm
Posts: 946
Location: The United Kingdom
Thanks Jamie and Keri.

So HiCy patients are not isolated? I assumed that while there was no immune system visitors would be restricted, but this isn't the case?

And once the four days are over the sickness disappears quickly?

One more question, sorry for all the questions, is nausea brought on as the cyclophosphamide is being administered?

Thanks!


Top
 Profile  
 
 Post subject:
PostPosted: Sun Oct 26, 2008 3:55 pm 
Offline
Getting to Know You...
User avatar

Joined: Thu Jan 17, 2008 4:00 pm
Posts: 20
Location: Chicago, Illinois
L wrote:
Thanks Jamie and Keri.

So HiCy patients are not isolated? I assumed that while there was no immune system visitors would be restricted, but this isn't the case?

And once the four days are over the sickness disappears quickly?

One more question, sorry for all the questions, is nausea brought on as the cyclophosphamide is being administered?

thanks!


This is what I recall.

You have to bring someone with you. This person is safe for you to be with.
There are specific instructions once you get to the hospital. All of your instructions about after care are very specific. Example mask, hand-washing, etc.
The nausea is from the drug and anti nausea drugs are given.

look at www.chrishadms.com there are pictures of him in the hospital and after. Also www.rebootingkathy.blogspot.com .


Top
 Profile  
 
 Post subject:
PostPosted: Mon Oct 27, 2008 4:32 am 
Offline
Family Elder
User avatar

Joined: Sat Oct 20, 2007 3:00 pm
Posts: 946
Location: The United Kingdom
thanks !


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 6 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Have sent my records to JH for HiCy

ljm

10

2352

Wed Dec 31, 1969 5:00 pm

Guest View the latest post

There are no new unread posts for this topic. Spinal Tap pre HiCy

RedPenguins

0

1343

Wed Sep 24, 2008 12:50 am

RedPenguins View the latest post

There are no new unread posts for this topic. HiCy Check

pvns2005

10

1957

Wed Nov 26, 2008 8:57 am

chrishasms View the latest post

There are no new unread posts for this topic. CCSVI before HiCy

LR1234

5

2340

Mon Jul 20, 2009 8:41 am

chrishasms View the latest post

There are no new unread posts for this topic. HiCy in Europe

Pesho

8

2140

Mon Jul 16, 2012 8:15 am

LR1234 View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of Multiple Sclerosis stories on Experience Project. Experience Project is community where people connect through their life experiences. It's made by the same people who built This is MS, on the premise that no single life experience-- like having MS-- defines a person. EP covers over 10 million true stories about every possible life experience. Find yours!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers | Song Meanings