High Dose Cyclophosphamide outside of the US

A board to discuss Revimmune as a potential therapy for multiple sclerosis

Postby patientx » Tue Nov 04, 2008 7:15 am

For you guys in England, what is the approval process like to get on one of the DMDs? Do you only need the doctor's go ahead, or does the NHS have to approve it also?

Also, once you are approved, can you take any of the DMDs, or are you limited to what the NHS tells you?
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Postby Cyclops » Tue Nov 04, 2008 8:43 am

I was diagnosed with MS whilst abroad (expensive). When I got back to the UK the NHS paid for all my treatment abroad without question.

I spent 15 mins with a UK neuro to confirm diagnosis and was then offered either interferon or copaxone. I chose copaxone and the first batch was delivered to my house within a week.

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Postby chrishasms » Tue Nov 04, 2008 9:09 am

I am really beginning to hate my wonderful home country. LOL
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Postby Magpied » Fri Nov 07, 2008 3:44 pm

Hi L,

Where in the UK are you getting this treatment? I've been hoping someone like you would come up with this exact solution!

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Postby Jamie » Fri Nov 07, 2008 3:56 pm

Bloody hell, a Newcastle fan.

Don't make the mistake of keeping Kinnear, it's the same as what happened with Roeder.

Good luck with getting this treatment.
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Postby mrhodes40 » Fri Nov 07, 2008 4:56 pm

watch also the PBS documentary "Sick around the world" also for more on how other countries do health care. Very good

We are genuinely truly screwed up in the US. The biggest difference between us and other countries is that we allow profit, other countries do not. We also get less healthcare.

The swiss interview was the most similar to our situation (for profit private insurance) and in 94 or so they switched to a social type system right when Hillary as first lady wanted to do so here. It works very well for the swiss and the gov't official that discussed it said essentially that if one has the misfortune to be the one that some terrible illness happens to, well the rest of society should help you out. There was huge resistance to it before the fact, but now even outspoken nay sayers are all for it.

Apparently we are the only industrialized country remaining for profit healthcare, and we really are 37th for healthiness. The myth of "the best healthcare in the world" is the biggest lie ever. Healthcare is bad here.

one argument offered is that unless people get this huge profit they will have no money to research with. Are you kidding me? the big pharma is going to close their doors because they aren't making enough profit? Seems to me they are very happy to sell drugs to some of these other countries with price controls in place, thank you very much.

the no profit countries still have insurance companies, they just compete to offer better service for the money. Watch it ; it's good
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Postby Magpied » Sat Nov 08, 2008 4:09 am

No Jamie, I'm not a Newcasle fan. Infact, I haven't the faintest of what you're going on about. My nickname was chosen purely because it's metaphoric........

Come on L, where are you? :P
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Postby L » Sun Nov 09, 2008 10:25 am

Magpied wrote:No Jamie, I'm not a Newcasle fan. Infact, I haven't the faintest of what you're going on about. My nickname was chosen purely because it's metaphoric........

Come on L, where are you? :P


I'm in London. I'll post all the details though when it's set in stone in a few weeks...
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Postby L » Sun Nov 09, 2008 10:30 am

Magpied wrote:No Jamie, I'm not a Newcasle fan. Infact, I haven't the faintest of what you're going on about. My nickname was chosen purely because it's metaphoric........

Come on L, where are you? :P



I used to have a stuffed magpie (I'm a vegetarian but it's ok - it was stuffed a long, long time ago). It brought bad luck. I got MS and my girlfriend left me too. But I bought a second magpie and I met my true love and we are very happy together, but she did insist that I get rid of the magpies. She's not a fan of dead birds in the flat.

Magpied, I PMd you, by the way.

-edit-

I ought to add, in case I'm making no sense, 'One for sorrow, Two for joy.'

The Scots believe that magpies have a drop of the devil's blood under their tongue! Just imagine! I'm not superstitious but, I tell you, that single stuffed magpie brought me a lot of misfortune...
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Postby dave38 » Sat Nov 29, 2008 10:34 am

Just joined this site and forgive me if I'm posting out of turn, but I'm in the UK as well and have Progressive-Relapsing MS. I'd be very interested to hear how it goes for you with the RevImmune as I am very interested in trying it as well.
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