Jamie wrote:Hi All,
Just got back from the Maldives - veliganduisland.com if anyone is interested!
It was kind of emotional for us as this time last year was when Mel was at her worst and the holiday (same island) kinda sucked as a result, she was unable to walk at one stage and could only stay awake for a couple of hours at a time.
What a turn around after a year.
Now she had only one bad day (just some minor double vision and hand tingling) and that was caused by overheating and stress (we'd had a row that day, 100% my fault of course and her old warning signs flashed).
Things are great with her MS, unless completely exhausted or overheated she has no real symptoms.
6 month MRI showed no activity and her two 'black holes' had disappeared.
No EDSS test as we couldn't make it to Baltimore, but she'll be going in March.
I am so grateful that she was lucky enough to be treated with this so early into her MS (6 months post -diagnosis) with so little disability accrued (although 3 relapses in that period was frightening). No chickens are being counted and we still have the mindset of 'just a few years relief', but the treatment is so promising, even if it takes a couple of goes to get rid of every memory cell.
Good luck to you all,
Users browsing this forum: No registered users