This Is MS Multiple Sclerosis Community: Knowledge & Support

No, it was a totally different test- a blood test for a protein that is released by the placenta which signifies labor is impending. Nothing to do with MS at all.

I am just so affected by MS all the time that I would think about it even more if I knew I had the disease still lurking in my body. Right now my arms and hands are hard to use and my legs make every step a very conscious decision. It would be incredibly difficult for me to go thru HiCy again. It was a barbaric experience.

Sandy it kills me to hear you say you are having such a bad go of it.

I was one of the lucky ones who showed immediate improvement and I am still holding on to what I have now.

Thursday I have my regular MRI, and, if I am active, I'm doing this again. I asked Doug and he said OK but he wants to see my MRI first.

Well, I have definitely had improvement from the treatment. But, my hands and arms were working a bit better in Sept. than now. I lost some function in my right hand years ago. I did regain most of what I lost in my hands and arms over the 2 years prior to HiCy, but seem to have lost a bit since Sept. The spasticity has been bad and my pain level has been really high in all my limbs. I am still walking around the house and down the driveway without my cane, and I naviage the stairs pretty well at the beginning of the day, and not so well at the end of the day. So, it has been worse, but I'd sure like it to be better.

sandy

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Thanks, Bob. When people ask me how I am, I have to say that I am stable. I do have to add, that when people see me for the first time since the treatment, they say that I look like a different person. I did gain a lot over the first 3 months. I couldn't even stand with my cane for more than a minute or 2 before HiCy, and as I have said, I believe I was 6 months away from a nursing home- I have absolutely no regrets about having had it.

But, as far as going for even a short walk with my cane or having anywhere near normal balance, or endurance with my arms and legs, it could be alot better. That's not the fault of HiCy, just the need for treatment for SPMS, and permanent damage from demylination. It seems to have taken research a long time to come along and even begin to address anything other than inflammation and active lesions.

Sandy[/i]