Based on the info you guys gave it seems as if it is 50 mg for each kg of your ideal body weight? That is what I read. I think.... and if that is the case that is approx dosage I received (mine calculated out to 48 mg). I read that everyone had to take Mesna and Neulasta (I'm assuming that was the WBC growth factor). I had to take all of that as well with every chemo treatment. It took months for my counts to rebound to a normal level after chemo. My thyroid never bounced back - they are chalking that one up to chemo and the interferon therapy. I maxed out on Adriamycin, can't ever take that in my life time again. Cytoxan and Ifos levels were both reaching the borderline of taking too much and putting myself at higher risk for developing a blood cancer later in life.
I have had a quiet course of MS thus far. Only 1 bad exacerbation - numbness in my R arm, hand, fingers, leg, foot and toes. I regained everything from that loss except for my last 3 digits of my fingers. During my chemo treatments I regained the sensation except for the tips of those 3 fingers and now that is the only symptom from that attack left. I apparently have nerve damage and my back and my legs will burn/itch from nerve pain when I get really hot. It always goes away when I cool off.
My insurance company called yesterday to let me know that our co-pays had gone back to what they were last year, since that is the case, I am thinking about starting therapy again. I dread getting back on Rebif and am considering taking copaxone instead to see if the side effects are better for me. Then again, maybe Avonex b/c I would only have side effects once a week. I know the interferon is still maintaining therapeutic levels in my bloodstream b/c I have been off of it since I ran out of my last rx and that was only 2 months ago, so I still have a month of relative safety. I'm going to have to talk to my neuro regarding the chemo I have had and the risks of taking no immunomodulatory meds unless I have an exacerbation somewhere down the road. The unknown is so scary! I would hate to have disease progression b/c I didn't take the meds, but then again, I don't want the potential side effects and long term effects of the treatment if I don't have to.
I just don't know what to do!! Just wait until I know the net is there or jump and just expect it to be there............