happytown wrote:Are there any new updates from cytoxan and how you are doing if you have had this treatment? I find it hard to believe it is a good thing to wipe out your immune system. It is not necessary. With MS you have some protection, but wipe out what is left and you are wide open. I know it sounds like a wonderful fast miracle. But I just do not believe it for a second. I wish it was not approved in the states. Stem cells are not approved. CCVSI is not approved. But people that get both of these treatments have phenomenal results. I understand people get desperate, I get that. But this is so violent and drastic. Wiping your immune system out, and I dont mean to offend anyone, but it does not make sense. I am glad it has worked for some people. But, there are actually more patients it has not helped than those that it has. It is sad to have MS but a person can make it a triumph or a tragedy. And I know people are saying,"You don't understand.." I expect that but I don't think people with MS understand how scared a person gets when they love someone more than life, and they don't take that into account. Why not try other treatments first like stem cells of CCVSI, or both? Don't get me wrong, you can be against something but still be supportive of your significant other. It is hard but can be done. The anxiety you get from worrying about this kind of thing is indescribable. It causes me insomnia. I can go 3 days without sleep. Very stressful. It has aged me. I have no desire to eat. All I can think about is how I would give anything if they would not go through with this.
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