msmything wrote:Hi Chris, I'll be working with Dr. Balabanov from Rush. Hopefully I'll start in january. All insurance company dependent at this point. Can you tell me about your experience from that regard?
DJBowlin wrote:My sis has Primary Progressive MS and is currently in the middle of a BAD exacerbation. After a lot of thought, she & her neuro decided to treat with Cytoxan . After a few days in hospital to administer the Cytoxan, she was moved to rehab …and that’s where the fun began.
She’s been having a lot of bizarre psychological issues - paranoia (she is convinced everyone is trying to kill her by replacing the oxygen in her nasal cannula with carbon dioxide), she says there are cameras in her room, the nurses all hate her and won’t help her …the list goes on & on. Her doc thinks this may all be caused by a drug interaction in conjunction with the cytoxan as well as the exacerbation and sleep deprivation (we believe she may also have sleep apnea).
Does anyone have any experience with Cytoxan side effects such as these? Or perhaps experienced/heard of anyone experiencing anything similar while having an exacerbation? Its very stressful for us to see her going through it and we are struggling to understand and cope.
Users browsing this forum: No registered users