Thanks Jamie, I called John Hopkins today to get more information.I'm definitely interested. Doing pretty well right now-after 17 years- and would like to keep it that way. Are there personal stories of people who have tried Revimmune and how it effected them? I'm sure treatment time is not the time to be blogging but it would be reassuring for those of us considering going through with it. If I do it, I'll have my husband keep records for me. The doctor I talked to said 5 yrs was the longest a person had gone after treatment without any MS activity. Also said they recommend staying on Copaxone afterwards as it would not interfere. I'm wondering if insurance will pay for the treatment and the Copaxone. What have other peoples' experiences with insurance been like? I'm on the west coast so travel and lodging for a month will be a factor too. Any amount is worth it, just curious as to what that amount might be.
There are two other programs that use the high dose.
They are both in the Chicago area.
Rush MS Center Phone 312 942 2253 They use a different name for the treatment.
Northwestern Hospital is doing the same treatment but they use your own stem cells as part of the treatment.
You may want to speak with them as well.