IPOP/HIPOP Post-chemo update : Revimmune (cyclophosphamide or cytoxan) - This Is MS Multiple Sclerosis Community: Knowledge & Support

View unanswered posts | View active topics

Board index » Treatments » Revimmune (cyclophosphamide or cytoxan)

All times are UTC - 8 hours [ DST ]

IPOP/HIPOP Post-chemo update

Page 1 of 1

[ 3 posts ]

Print view

Previous topic | Next topic

Author

Message

RedPenguins

Post subject: IPOP/HIPOP Post-chemo update

Posted: Thu May 14, 2009 8:35 pm

Family Elder

Joined: Sat Apr 26, 2008 3:00 pm
Posts: 153
Location: Los Angeles, CA

So, just an update.

I went to IPOP on Monday and Tuesday. My counts were still good (white counts and neuts in the 5000 range). Had off on Wednesday. Went in today (Thursday) and my counts are in the 2200 range. Everything else looks good. They removed the two little stitches.

I'm off from IPOP tomorrow (Friday)....and if on Saturday my counts are good (meaning I don't need any transfusions or anything), I will again be off on Sunday. On Monday I start the growth factor and so no more days off.

They were going to start the growth factor on Saturday, as per protocol (start on a certain day post chemo)...but I asked that be changed to be done when my numbers actually hit zero - as last time, I didn't hit zero. Now, none of us can say that that is why I reactivated and needed a redose.......but.....since I'm here doing it again - and it's not part of a trial, why not alter it. Maybe Dr. Brodsky and my NP are just humoring me, but that's okay, I'll take it. Makes sense to me to make sure all the buggers are out of me, ya know?

Everything is going smoothly and no ill effects. Rarely I feel queasy after eating, but not often and nothing major. I can't complain (except for the fact that once again I didn't get sick! ha ha).

My thought is - this time it will get everything!!

I'm preparing to feel weaker and more tired over the next few days as my numbers tank....and that's okay. Though, I wonder how much more tired one could possibly be - I'm zonked all the time! Provigil and Daytrana are having a hard time helping me hold up my head all day. But....the HiCy will kick in soon, I will be bald, but I'll have my energy back I soon I hope!!

Will keep you posted,

~Keri

Top

pvns2005

Post subject:

Posted: Fri May 15, 2009 9:24 am

Family Member

Joined: Fri Nov 17, 2006 4:00 pm
Posts: 85

Hey Kari,
It was 4 days post HiCy before they gave me the growth factor. I was -0 WBC a week after HiCy. when your numbers bottom out you will be the weakest you ever felt. If you remember I had to be readmited to JH because of the fever and there was no way I was going to make it back and forth to the hospital everyday in the state of health I was in. When your immune system is gone you will know it!!

Stay tough Girly!!

Chris S..

Top

chrishasms

Post subject:

Posted: Fri May 15, 2009 11:39 am

Family Elder

Joined: Thu Sep 14, 2006 3:00 pm
Posts: 1161

I agree with Chris. I would be surprised if you didn't pop a neutropenic fever this time when you come back online. However, once you are online you will start to feel better!

Good Job GF

Top

Page 1 of 1

[ 3 posts ]

Board index » Treatments » Revimmune (cyclophosphamide or cytoxan)

All times are UTC - 8 hours [ DST ]

Topics		Author	Replies	Views	Last post
Related topics
	Update - Day 4 post-Chemo	RedPenguins	6	1765	Fri Jul 11, 2008 3:19 pm Jamie
	Chris is at the IPOP from 10:30 till ????	chrishasms	0	1359	Wed Mar 19, 2008 5:42 am chrishasms
	3 month post hicy (round 2) update	RedPenguins	8	3023	Fri Feb 26, 2010 5:11 am AJWANTSACURE
	Days 3 & 4 - chemo done!	RedPenguins	3	1865	Thu May 14, 2009 9:34 am chrishasms
	Oral Chemo using Cyclophosphamide	CureOrBust	0	1458	Fri Oct 10, 2008 7:01 am CureOrBust

Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Jump to: