vitamin D?

A board to discuss Revimmune as a potential therapy for multiple sclerosis

vitamin D?

Postby RedPenguins » Mon May 25, 2009 6:49 pm

Does anyone know how much vitamin D (and what kind? d2 or d3??) the people who did hicy @ Rush are currently taking?

thanks,

keri
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Postby chrishasms » Tue May 26, 2009 9:32 am

I use the D3 or as my wife puts it, "The good stuff."

How long was your turn around time Keri? Day in to release?
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Postby indigoinmotion » Tue May 26, 2009 4:21 pm

Hi Chris,

I have been following your journey as well as Kerri's. You guys have given me a lot of hope for the future of ms treatment. I love reading about your progress! Maybe one day I'll join your ranks and consult a dr. at John Hopkins.
How much D3 do you take a day? I have been taking up to 10, 000 iu and it seems to be helping.

Thanks, karen: )
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Postby Curious11 » Wed May 27, 2009 4:51 am

I was told to take 5,000 IU's of Vitamin D (type was not specified) a day from my Neuro at Rush.
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Postby chrishasms » Wed May 27, 2009 10:08 am

My wife as well as Jimmylegs will tell you the best kind and most easily absorbed is the D3.

Have you Vitamin D tested because more than likely it is low. Your GP will give you some killer Vitamin d to get you up to a normal range.

I take 2000iu a day at night for best absorption. This keeps me near 40.
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Postby prof8 » Thu May 28, 2009 8:30 pm

I did not have HiCy. However, I take 4,000 a day now. My big MS clinic likes to see their MS patients in the 60-80 range for Vitamin D. My regular GP said always take it with food as it is better absorbed with fat (even saltine crackers will do for "fat").
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Postby jimmylegs » Fri May 29, 2009 6:49 am

fyi you need to keep you magnesium and calcium intake up there to match 4000IU per day d3. i took d3 with mag and cal for oh, over a year i guess, but i did the mag aspect wrong at first and ended up having troubles because of it.
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I just started at a research hospital

Postby jbro » Tue Jun 09, 2009 10:08 am

Hello everybody. I have had chroinic progressive MS [not sure if primary or secondary] for 23 years. I was turned down by JH for the Revimmune procedure. I just started at a research hospital, Wash U. in StL, and I am not sure of what current studies are the most promising, and whether they are available to people with progressive, rather than R-R MS.

The JH people said Revimmune would not be good for me b/c I am too far along, but I have always wondered if it had more to do with the fact that I am not R-R, which studies seem to prefer.

One other question. I have noticed people here writing about vitamin D. Is that something everybody with MS shopuld be taking or is that to fight the side effects of a study process?
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Re: I just started at a research hospital

Postby daniel » Sun Jun 14, 2009 10:13 am

jbro wrote:
...snip...
One other question. I have noticed people here writing about vitamin D. Is that something everybody with MS shopuld be taking or is that to fight the side effects of a study process?


It seems that everyone with MS should be taking D3. My neurologist was/is running studies on vitamin D and it seems to cut down on relapses: http://www.webmd.com/multiple-sclerosis/news/20090428/high-doses-vitamin-d-cut-ms-relapses

Edit: By everyone taking vitamin D, I mean everyone should get their blood levels tested and take enough supplements/get enough sunlight/tanning booth time to raise their levels to between 50–80 ng/mL (or 125–200 nM/L) as per http://www.vitamindcouncil.org/
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Postby AJWANTSACURE » Fri Feb 26, 2010 5:20 am

my neurologist gave me a script for vit D3 - 50,000 iu once a weeek.
<strong>STAY IN THE FIGHT TO FIND A CURE FOR MS</strong>
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Postby tashenoir » Tue Mar 02, 2010 6:36 pm

5000 IU of D3.

:D
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