This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu May 23, 2013 12:47 pm

View unanswered posts | View active topics


Board index » Treatments » Revimmune (cyclophosphamide or cytoxan)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 1
  [ 6 posts ] 
  Print view Previous topic | Next topic 
Author Message
mommyju
PostPosted: Fri Aug 28, 2009 1:07 pm 
Offline
Newbie
User avatar

Joined: Thu Aug 27, 2009 3:00 pm
Posts: 5
Location: Las Vegas
Hello everybody, my name is Juliana I am new to this board...

my husband has MS and we are trying to get him into JH for Revimmune treatment ASAP due to his conditions... I was given an appointment for October 2010 :(
I was wondering how long did it take for some of you to get in.
Also if they gave you a far away date at first and were able to move your appointment to a closer date.

i have been talking to Mary Brown ( very helpful and understanding) at JH...
but nothing yet!

We can't wait until next year!!!
Thank you all!
Top
 Profile  
 
steven73
 Post subject:
PostPosted: Sat Aug 29, 2009 4:15 am 
Offline
Family Member
User avatar

Joined: Tue Aug 05, 2008 3:00 pm
Posts: 33
I got in last year very rapidly during the open label period that occured during the summer of 2008. I sent my records in May, saw Dr. Kerr and Brodsky in early June and was treated in early July.

I remember they called right after my records arrived and said that I'd be receiving a letter letting me know of an appointment much later but they'd call with something sooner. They had to get me in their system and the later appointment was like an auto-generated type of thing.

I will say that the widespread excitement about HiCy was just starting at that point so there probably is more demand now and again, when I did it, it was open label for a while.

Best of luck.
Top
 Profile  
 
mommyju
 Post subject:
PostPosted: Sat Aug 29, 2009 7:35 am 
Offline
Newbie
User avatar

Joined: Thu Aug 27, 2009 3:00 pm
Posts: 5
Location: Las Vegas
Thank you so much for sharing "Steven73" (not sure about your name)
Things have changed quite a bit since last year at JH!

I can't wait for an opening... praying every day!
Hope the treatment went well for you and is helping you.

smiles,
juliana
Top
 Profile  
 
RedPenguins
 Post subject:
PostPosted: Sun Aug 30, 2009 9:43 pm 
Offline
Family Elder
User avatar

Joined: Sat Apr 26, 2008 3:00 pm
Posts: 153
Location: Los Angeles, CA
I was also in the same timeline as Steven. Sent records in May, appointment in June, HiCy in July. I then went back for a second round of HiCy this past May.

Keep calling them - hound them if you have to - it's your health!!

Good luck and keep us posted,

~Keri
Top
 Profile  
 
mommasan
 Post subject:
PostPosted: Mon Aug 31, 2009 8:00 am 
Offline
Family Elder
User avatar

Joined: Sat Mar 15, 2008 4:00 pm
Posts: 122
Hi Keri,
How are you?

Sandy
Top
 Profile  
 
mommyju
 Post subject:
PostPosted: Thu Sep 03, 2009 1:16 pm 
Offline
Newbie
User avatar

Joined: Thu Aug 27, 2009 3:00 pm
Posts: 5
Location: Las Vegas
Just got an appointment for my husband for December!!! Yeahhh!
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 1
  [ 6 posts ] 

Board index » Treatments » Revimmune (cyclophosphamide or cytoxan)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. If cytoxan has been used for so long...

patientx

3

1783

Thu Sep 25, 2008 7:13 am

patientx View the latest post

There are no new unread posts for this topic. Long-Acting 4-AP following HiCy

mommasan

1

1258

Fri Dec 12, 2008 4:10 pm

chrishasms View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: