Your cookies are packed and ready to go to UPS Monday. I think you'll really like them, they're our family's secret recipe.
You're right about my Dr.. My neuro's office is actually where all the stuff happens. He and his partner are very, very active in MS research. Dayton is a small town (relatively, about 200,000 people), but these guys, Alan Jacobs and Lawrence Goldstick, are always giving speeches and stuff concerning new MS research all over the place. They bought a big office in an old hospital that is now like a medical campus, and they put in an infusion lab for Tysabri and 'roids and the like. Havng a lab and imaging and basically all the services there on site at the 'campus' makes it that much easier for them to be a trial site. They are currently running the Campath trial, the Tovaxin trial, the BioMS MBP trial, they have basically turned the practice into an MS clinic. I love it. They still see Parkinson's patients and all other neurological disorders, but they have chosen to specialize in the last few years. In the last couple of years since I began the tovaxin debacle (at least it was for me) they have put on a staff of three coordinators, two nurses for nothing but trial dosing and IVSM and Tysabri dosing. I used to get very frustrated when I first got dx'd because I'd have to wait sometimes up to two hours in the waiting room, but people always told me to just bring a book, it would be worth the wait.
I really like my neuro. He is so current and just when I think I've got some news that he hasn't heard before about a new drug, or the recent resurgence of HiCy, he basically educates me on it. He is not against HiCy, but he was also at Hopkins and at Harvard in the late 60's when they were just beginning to expirement. His hesitancy with HiCy, even though he understands how far the process has come, was that he saw some patients that it did not help. He alwasy qualifies it with the fact that in the beginning of HiCy research, they were targetting very aggressive Refractory RRMS patients and rapidly progressing PPMS, so he does understand that some of those patients may have just been screwed no matter what course of action they took. Well once he found out that JH was temporarily not 'taking all comers', that's when he suggested Campath. When he found out that I didn't qualify due to my recent Tovaxin dose, he is the one who asked if I'd heard of Rituxan. So it's really good to hear your Dr. not say "let's try Betaseron, or let's try Rebif". He really thinks the MAB's are it, at least for right now, and since I can't get into JH right now, I'm liking the fact that he isn't opposed to trying off lable stuff. It's also pleasing that he is very aware of what is going on in MS research.
Some Dr's just stick with the stuff that's established and they aren't as current with new research. I can't imagine being a patient that comes on here and asks his Dr. about Campath and they don't know what the patient is referring to, but still tries to act haughty and warns against it just because they don't know what's going on with it. I would have to change Docs, and the closest MS clinic around here is at Ohio State. It's not that far away (90 mins), but it's nice to have my fantastic neuro. in my backyard.