munchkin wrote:jimmylegs - that's wonderful about the consulting.
I also support the decision to move the thread.
Because CCSVI worked for me before my veins occluded and scarred I don't think UCC would have made any difference. The issue was not pressure or narrowed passages. My problems were clotting from a tear and scarring from over-dilation. There is a lot of information on the CCSVI thread about the risks involved, but the thread is about the CCSVI procedure, not alternate therapies. Maybe the UCC thread should have it's own spot like CCSVI or any of the drug therapies. There are people who might be interested in UCC but don't know where to find that information because it has been in the CCSVI thread and they would not think to look there.
It's sad that these things have happened to some of us on top of MS, but we need to have the IR's/Vascular specialists start figuring out how to deal with the scarring, clotting, and restenosising. In a way that is safe and affordable. It doesn't matter what benefit UCC might have, it will not open my occluded vein and will not remove the scarring from my other vein. At this point in time those are my concerns and I want that to be something the Dr's start actively dealing with.
Those of us from Canada have been paying for this procedure from the get go and it's unfortunate that this is starting to happen in the states.
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