shucks wrote:Is there a place to get this treatment inside of the US but outside of a clinical trial? It seems from the federal website that the trials are over. I understand that it can still take years to get approved in the US, and Many folks with MS dont have years befor they become REALLY disabled.
shucks wrote:Is the treatment for ms the exact same treatment for cancer? What would the differences be?
shucks wrote:If the treatment reboots the immune system, how could the T cells cause an exacerbation? I know it is written elsewhere but could you guys who have had it done let us know your edss before and now a good period of time after the treatment? From what I read here and elsewhere, the treatment slows or stops the progression in about 70-80 percent of people,m and a smaller portion have some improvements. Arent those similar to the results people are getting with Campath or cytoxin? I'm not trying to argue, just figure out why this super expensive treatment is considered by some folks to be the magic bullet. If that's what it is, I'm going to get it, but if it isn't, maybe I can wait till 2020. Myprogression has been pretty severe in the last 6 months, and worry is that Whatever i do I need to do NOW.
shucks wrote:What is the sterility rate in the procedure? My girlfriend and I have been discussing our future, and that could be a big deal for me. I dont see how to afford the treatment right now, though I'm brainstorming, but that on top of storing man juice seems rough. How about your testosterone issues george? Is that a common side effect? Thanks for the info guys. For those of you that are planning on the procedure, where are you thinking of, and how much is it there?
Did they remove your central line when you left the hospital? How long was it in for?
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