This treatment is basically a bone marrow transplant. One of the guys I do Tysabri with, here in Melbourne, went and saw Dr Andrews and his team a few weeks ago. At the moment he is "98%" approved to go ahead with it, just waiting on a current MRI.
http://www.heraldsun.com.au/ipad/mum-iv ... 6004652530
This link is to an article in the Herald Sun, which was where Carmel's case was first reported. I think it contains a little bit more info than the other article you guys had found.
numbness23 wrote:I was recently in chicago and went thru the screening with Dr Burt. My mri showed very little brain lesions rather all spine activity. Unfortnately nothing showed "enhancement." I say unfortunately because that was enough to be refused for the study. I believe all our lesions enhance at one time or the other and it just isnt always visible on MRI. So after an $8000 mri and about $2000 in appointment and hotel bills I am out just like that.
Does anyone knof if these patients were all RRMS? This is a requirment of Dr Burts proocol.
Lyon wrote:HSCT has long been one of my strong interests and I was your results with hope and interest....I have no interest in seeming insulting but curiosity compels that I ask, what exactly is your definition of the word "cure"?
Lyon wrote:Great to hear George. The reasons you mention are the reasons I'm interested in rebooting as compared to long term suppression.
I have to agree with your outlook that the definition of "cure" is something each person has to define for themselves. I started exactly such a thread years ago http://www.thisisms.com/ftopic-2940-0-d ... rasc-.html and the responses made it obvious that "cure" means something different to everyone. It's also understandable that some people get uncomfortable with others using the word "cure" too lightly because at some level maybe the only true definition of "cured" is having died of something other than MS. Time is the judge.
I, and I think others, appreciate your sharing your experiences because I find it interesting as heck that there are MS people 6, 7 or more years with no progression using the same or similar treatment and I hope to watch firsthand as you get that far "out" from treatment with no advancement.
Asher wrote:55,700 EUR or 81,200 USD to be precise
leetz wrote:right about now I dont even have 55 US dollar's because of this f'd up disease (used to be a Nurse) now physically can't do it anymore...unfortunately this is alot of our reality....money talk's...so I don't walk..lol...gonna laugh or I will just cry...33 yr's old and have seen 80 year old's walk and function better than I can...crazy isn't it??? gotta just wait on a clinical trial to come my way I suppose...did FDA trial for "rebooting immune system"...did NADA for me...helped 2 other's in my group though...read sig. below...did that too.......errrrrrrrrhhhhhh
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