CVfactor wrote:Hi Asher,
I believe you are well on your way to stopping the progression of MS and I think both you and George have a lot of courage in undertaking this procedure.
But I was wondering why other people who have had HSCT do not post here on this website? It seems there should have been many patients with MS who underwent this during the many trials.
It would be good to here their experiences also. It may be that they were turned off because of the many fanatics who are on here, but I think this part of the forum is a safe haven for people who actually believe in truth.
CVfactor. . . reading your words is reassuring and lets me know that you have a very good grasp & understanding of the issues. Kudos to you!
You're very kind with your words for Asher and I. As for me I think it was not so much courage that attracted me to HSCT for my MS, but was more a matter of determination. I was determined to beat my disease using the big guns of science instead of going down the path of ignorance & irrational belief in unproven treatments (i.e. CCSVI). But anyway, thank you for your words. Often dogma in the general population is wrong when people follow the herd mentality. HSCT is obviously not yet followed by the herd.
As to why there are not more MS'ers that had HSCT posting here. . . good question. I think the population of such people are somewhat disperate (not 'desperate') and likely are not all linked into a central location of communication on this subject. I was actually thinking of creating something akin to a "HSCT Club" for MS'ers so that there might somewhere be created a central respository of patient information that could be shared by those wishing to do so. I might try to link up both with Dave Bexfield and Scott & Carmel Turner to kick-start such an effort. After all, in just another (approximately) ten years, HSCT will inevitably become an FDA-approved curative treatment for MS. Just a matter of time now.