Asher is very kind with his praise for my helping to steer him in the direction of HSCT to win the battle over his MS. But don't give me too much credit. Asher is the one that made the educated decision to receive HSCT to beat his MS and that credit goes entirely to him (and his wonderful wife & son). On top of this, although I don't get/want money or fame from my HSCT blog, I have received something valuable in return. I get to see another person now cured of MS disease activity & progression, and I now have the best friend (Asher) one could hope for in life. That is worth way more than money. We are brothers! Now let's see if Asher can report 'substantial' improvement of his pre-existing MS symptoms at 12-18 months, just as I have. I'm praying and betting he will. Dr. Burt thinks it likely. . . http://www.youtube.com/watch?v=msYTOSo4 ... re=channel
Asher's post-HSCT status page. . . http://themscure.blogspot.com/2011/06/p ... cohen.html
My own 2-year post-transplantation "birthday" is coming up at the end of this month (Dec 28) and I will be making a 2-year post on my status. Sneek peek: Although I can't run a mile, I can walk a mile-and-a-half without stopping to rest (I couldn't do that prior to HSCT as I was at EDSS 3.5 with a maximum walking range of only a few hundred meters and today I'm at EDSS 2.0). Today I'm still MS progression-free and I have been able to keep all of the tremendous improvement (EDSS gains) I have already experienced. I no longer see a neurologist (no longer necessary) and I love that I no longer take any medication of any kind for MS. No more injections (Avonex that I had taken for 15 years). Yipee! My future belongs to me again, not a wheelchair.
As a side note. I am also aware of about 6 people that have already had HSCT for their MS at various facilities around the world after reading my blog, and there are approximately another dozen lined up to get treatment in the near future. I'm happy to communicate with these people and share what info I have so that people can make a better-informed decision.
Shucks. . . . if recovery timeframe is an important factor it appears that 'most' (but not garaunteed for all) people will have a more rapid recovery timeframe with the non-myeloablative HSCT protocol. If it were me and this were part of the decision, probably I would go for the non-myeloablative HSCT. Luckily this wasn't a factor for my own treatment and is why I went for the myeloablative protocol. I was 90% recovered from the latent chemo effects (mainly tiredeness) at 7 months post-transplantation. However, I was able to go back to my desk job at about 4 months.
Treatment options that I am aware of. . . http://themscure.blogspot.com/2011/06/g ... -have.html
CV. . . all good points, as usual. My own opinion regarding why the broader MS community doesn't jump onto the firm science behind the outstanding curative effects of HSCT is that most likely it's the cost of the procedure. Understandably many (most?) people cannot afford to do the procedure and its probably human nature to deny that HSCT works if you can't get it anyway. But once insurance begins to cover HSCT for MS (an absolute eventuality), then I bet it will finally become much more popular than CCSVI. Just my theory about human nature.