Daisy3 wrote:Are you UK based Asher?
My husband recently attended a talk for newly diagnosed ms people and was told that stem cells were about ten years off. What would you say to that?
Bear in mind that the other half suffers from progressive ms..
shucks wrote:I saw a thing by Giles Elrington, who is an MS expert and dr, and he says the same "unproven" and "years away" stuff too. I wonder why such experts discount a treatment that seems to have been proven as an option?
Asher wrote:6 weeks post transplantation: Still recuperating from the chemo. My MS afflicted right leg and arm are still much weaker than they were before the chemo. But this was to be expected and I am clearly getting stronger every day. I can do with one nap a day and I can now walk about at home unaided. There are two new things I have noticed:
- Before the treatment I often felt dizzy and unstable while taking a shower. Although my right leg is very weak, I can now take a shower and remain 100% stable.
- Optic Neuritis: Before treatment I had a mild form of Optic Neuritis in my right eye. I did not suffer from double vision but there was always a very subtle internal eye pressure and subtle blurring that went with it. Today I became aware that this subtle Optic Neuritis is all but gone.
Now I am not drawing any definitive conclusions. Just reporting the 'what is'. should any of these symptoms return, for what ever reason, I will report that too.
Have a lovely day (or evening), Asher
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