6 weeks post transplantation: Still recuperating from the chemo. My MS afflicted right leg and arm are still much weaker than they were before the chemo. But this was to be expected and I am clearly getting stronger every day. I can do with one nap a day and I can now walk about at home unaided. There are two new things I have noticed:
- Before the treatment I often felt dizzy and unstable while taking a shower. Although my right leg is very weak, I can now take a shower and remain 100% stable.
- Optic Neuritis: Before treatment I had a mild form of Optic Neuritis in my right eye. I did not suffer from double vision but there was always a very subtle internal eye pressure and subtle blurring that went with it. Today I became aware that this subtle Optic Neuritis is all but gone.
Now I am not drawing any definitive conclusions. Just reporting the 'what is'. should any of these symptoms return, for what ever reason, I will report that too.
Have a lovely day (or evening), Asher
So glad to hear things are on-track, Asher!
I also find your symptomatic descriptions & report very interesting. I know it's better to be conservative with the symptom-change description (especially so soon following treatment), but I'd bet these are real improvements you are experiencing. The reason I think so is because typically damage in the brain inside the skull is the first to resolve following treatment, and then damage in the spinal collumn takes a little longer to respond to the HSCT. So both of the symptoms you describe (vision and ataxia/balance) are both functions inside your brain. So it is extremely encouraging to hear about this and is consistent with my own experience in which I had a few brain-related symptoms resolve almost immediately following HSCT (ataxia, vertigo, resting-fatigue and sensitivity to heat). Now that your immune system has been rendered antigen-naive & self-tolerant, I would bet on the excellent probability you will likely not see or experience any worsening going forward. Should mean that only improvement should be on the horizon. I'm really hoping so since it is so much within the realm of possibility.
Just FYI. . . here is my most recent report of symptomatic status & improvement.
http://themscure.blogspot.com/2011/06/1 ... tatus.html
This won't specifically apply to your case (no two cases are directly comparable) but because my result is "typical," you may also go down a similar path. I'll be sending the powerful thoughts of good fortune your way!
Please give my regards to your wonderful family.