ApVish wrote:Hi All,
My spouse was diagnosed with a RIS (radiologically isolated syndrome) with several white matter lesions in brain, with negative spinal tap and no lesions in the C-Spine,T-Spine and so far no symptoms (He is 33 yrs old). We went for brain MRI for compeltely different reasons (which turned to be negative as well..so far so good).
So since we were thrown with the news I have been getting familiar with MS and what we can do to help ourselves for a better life etc and this Stem cell transplant information has given us tremendous hope. Thanks for all the info.
Now for my question, I am trying to understand WHY the CCSVI believers are not agreeing with Stem Cell transplant and vice-versa. CCSVI states the MS begins as a vascular issue, but from what I read it never undermines the autoimmune nature of the disease (may be the blood flow problem is creating the auto immune effect over a period of time ???!@#$) , but yeah that would mean, even with the stem cell transplant, one can develop MS progression again may be in 15-20 yrs ? But 15-20 yrs of improved quality of life is still a good treatment than to take daily injections.....
What is that I am missing here ? Is my line of thought right ?
ApVish wrote:Thanks for the insight George, I have read your blog top to bottom
I sincerely hope you are correct about the progression stopping for lifetime. HSCT definitely gives people like us lot of confidence that there is something we could try to stop the disease progression.
I have another question for you, since you seem to have done a lot of research on this HSCT, you might have some insight into this question.
In MSWorld forum, there was a lady who said the HSCT can affect heart. Is that true ? I have researched on it and couldn't find any correlation on the claim. The reason I was worried is that my spouse has a dilatation on the aortic root ( has been there since he was a kid and not progressing and the doctors have said it might just stay like that for lifetime or might need some intervention if it progresses).
Have you done any research on HSCT and affecting heart claim ?
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