Thanks for the reply. My neuro was aware of studies that LDN helped with quality of life so I am still on it. I have been taking LDN for 2 or 3 years, I can't recall, and I have continue to decline during that time. I still take it though, as it may be even worse without it! I think it has helped my immune system as I have not been plagued with the illnesses I used to get regularly. It was mt family oc that suggested it and prescribes it, not my neuro. Same with my compounded 4-AP, as Fampridine isn't approved in Canada yet.
Kathy, 49 with PPMS,full time scooter.
Married to a wonderful man, mother to a darling 9 yr old boy