bspotts1 wrote:no posts here in over a month??? something wrong with my computer???
Hi Brad. . . . Shaight is right. Since we've gotten together and started the Facebook forum "HSCT for MS" it has really taken on an active life. I usually spend most of my time over there, but hope I can periodically stop in here, as well (good people here).
It's personally exciting for me to see what's happening in the FB forum. . . . indeed there have been at least four people that have recently completed HSCT at various facilities for their MS, and several others that are just about to start, and many more planning on it. I'm excited to see people actually seeking a 'real' medical prodedure that has the real potential to completely stop and reverse their underlying disease activity and progression. And also nice is that we don't allow participants to push commercial interests or things we know to be scams, such as ICM / Cell Medicine / Stem Cell Institute in Panama.
The nice thing about the HSCT FB forum is that we just focus on the science and "paying it forward" (wonderful term originally created by Carmel and Scott Turner) helping people that have had, or plan to have HSCT (including other autoimmune conditions in addition to MS).
Here's the FB forum site (in addition to, not in lieu of this good TIMS forum). Join if you'd like, or just read from the sidelines. Your input would be appreciated since we all have the same fundamental goal. . . Beating MS!https://www.facebook.com/#!/groups/149103351840242/
Hope everyone is well!