Best left to you to educate yourself and sort your feelings on whether you accept the risk of being on those. Regarding the risk of being on the "right" or "wrong" treatment during a clinical trial....my wife was in the Tovaxin IIb trial which we were very hopeful for maybe even confident of and which had a 2/3 ratio of getting the real thing and 1/3 would only get colored water for a year. With my wife being a new MSer at the time and not knowing if her disease progression was going to be mild or aggressive, finding herself on placebo for a year in the face of severe progression seemed pretty unfair and uncaring but had great hopes for Tovaxin and a very enticing factor in that clinical trial was that during the second year EVERYONE was to be offered the real thing, especially considering that my wife had tried Rebif for a month or so and decided that she wasn't going to stick herself with needles and therefore it was going to be Tovaxin or nothing.shucks wrote:The disconcerting part is that the control arm of the trial is fingolimod or tysabri, which both scare me way more than hsct treatment.
LR1234 wrote:Just a note...If you do decide to go for it, maybe it is worth going to a fertility centre to store what you need to for a future date (just in case) x
georgegoss wrote:we are expecting our second child any day now:
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