Stem Cell Treatment Testimonials

Discuss stem cells, adult and embryonic, and their therapeutic potential for MS here.

Re: Stem Cell Treatment Testimonials

Postby SLOV8213 » Mon Oct 21, 2013 12:06 pm

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Last edited by SLOV8213 on Thu Oct 24, 2013 1:24 pm, edited 1 time in total.
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Re: Stem Cell Treatment Testimonials

Postby Pesho » Wed Oct 23, 2013 10:52 am

Please provide source of information.
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Re: Stem Cell Treatment Testimonials

Postby SLOV8213 » Wed Oct 23, 2013 1:00 pm

I'm trying to find thew comment, it was on my facebook site. The patients name was Danielle I believe and the posting said the death occurred two weeks ago. Will post more info if I can find the actual person who posted it. Sorry.
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Re: Stem Cell Treatment Testimonials

Postby SLOV8213 » Wed Oct 23, 2013 5:03 pm

I just received a comment from the member who originally posted on facebook, she was wrong, mixing up the treatment centers. They patient died receiving an HSCT transplant in India. Kind of a difference.
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Re: Stem Cell Treatment Testimonials

Postby Pesho » Thu Oct 24, 2013 10:20 am

This is a huge difference. In Dr.Burt's trial excluding criteria is EDSS less than 6.0 and RRMS only, generally people still in good condition. In India they take almost anyone, it is not known in what condition the poor woman was.
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Re: Stem Cell Treatment Testimonials

Postby SLOV8213 » Thu Oct 24, 2013 10:35 am

Unfortunately I do not know more, and cannot rely on the source.
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Re: Stem Cell Treatment Testimonials

Postby shaight » Thu Oct 24, 2013 12:35 pm

slov - you should delete your post about Dr Burt.

A women did develop an infection and unfortunately passed away due to septicaemia in India under the care of Dr Amit. RIP

Several people have gone thru HSCT with Dr Amit and are doing fine today. Every type of treatment or operation has their risks with one of the biggest being infection. With HSCT that is amplified due to a virtually non-existent immune system.
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Re: Stem Cell Treatment Testimonials

Postby Pesho » Wed Mar 26, 2014 3:29 pm

I found a doctor in my home country that is willing to perform HSCT. There is some bureaucratic drawbacks to overcome, as this is not an approved treatment here and it might get tricky. Good point is the price, around 10 000 - 15 000$ because my insurance will cover the hospital stay and probably some of the medications. Will have more information next month and I hope in 2-3 to perform the procedure.
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Re: Stem Cell Treatment Testimonials

Postby Pesho » Thu Apr 24, 2014 11:47 am

Talked with the doctor again and we got things moving and it is going to be myeloablative hsct. I would prefer non-myeloablative, but they are not willing to perform it and probably have no experience with it. This is too good to be true to be honest and I just can't wait a few more months to get things cleared out hopefully do the procedure in probably half a year.
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Re: Stem Cell Treatment Testimonials

Postby reallyreally » Thu Apr 24, 2014 12:55 pm

Pesho wrote:Talked with the doctor again and we got things moving and it is going to be myeloablative hsct. I would prefer non-myeloablative, but they are not willing to perform it and probably have no experience with it. This is too good to be true to be honest and I just can't wait a few more months to get things cleared out hopefully do the procedure in probably half a year.



Congrats...that is great news! I go for my 6 month HSCT follow up in May. So far many of my symptoms have been reduced and I feel better than I did before the treatment. I am anxious to see what my new EDSS is going to be!
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