Domestic Stem cell therapy

Discuss stem cells, adult and embryonic, and their therapeutic potential for MS here.

Domestic Stem cell therapy

Postby HUD45 » Fri May 04, 2018 9:33 am

Hi. I have been researching stem cell procedures and various clinics that do the therapy. I am wondering if
anyone here has experiences to share.

The type I am learning about now involves umbilical stem cells directly placed into the lumbar spinal canal (intrathecal ). A one time shot, outpatient basis.

There are numerous clinics that have been providing these services domestically in the US for some time.

Others inject adipose stem cells into a gland behind the nose....

Of course there are testimonials available and provided studies to the positive but I hope to find successful recommendations if they truly exist.

Thanks in advance...HUD
User avatar
HUD45
Family Member
 
Posts: 78
Joined: Mon May 30, 2011 3:00 pm

Advertisement

Re: Domestic Stem cell therapy

Postby Tif » Thu May 17, 2018 8:05 pm

Hi Hud,
You're in luck....I did the Umbilical Cord tissue derived Mesenchymal Stem Cell UCMSC, via an IV, on May 2, 2018....so, 15 days ago. I did it in Scottsdale, AZ. Quick and easy.

I have improvements with my ability to move my legs on their own, without using my hands to move them. Today was the first time in years that my leg could lift high enough to cross the other, and then uncross. I did it twice. I'm very happy with that.

I don't feel I'm swaying (when I stand) like I would before, I'm sturdier....

I'm much more pliable, is what a friend said about me...the rigidity is gone. My legs are not fighting everything. They were always going stiff, and would fight against me...spasms.

Hope this helps!

Has anyone else tried it?

Tiff
Tif
Family Elder
 
Posts: 104
Joined: Fri Sep 13, 2013 8:34 am

Re: Domestic Stem cell therapy

Postby 81Charger » Mon May 21, 2018 8:21 am

Very interesting to hear your success. I'm very interested in this, my biggest question is the cost if you wouldn't mind sharing.

Thanks Glenn
81Charger
Family Member
 
Posts: 75
Joined: Tue Nov 24, 2009 4:00 pm
Location: New Brunswick, Canada

Re: Domestic Stem cell therapy

Postby ElliotB » Mon May 21, 2018 10:24 am

This topic/procedure is several years old and in spite of several years of time, there is still no conclusive evidence that it is effective, although 100% of the facilities doing the procedure will tell you otherwise.

More research and testing still needs to be done - there are many other less risky and less costly and likely more effective and safe options at this point in time.
ElliotB
Family Elder
 
Posts: 1374
Joined: Mon Feb 03, 2014 5:08 pm

Re: Domestic Stem cell therapy

Postby Tif » Tue May 22, 2018 12:10 pm

Hi,
The cost was $12,000. an IV injection. There are 90 million UCMSC per IV injection. It's done at 1 month intervals, for up to 3 injections.

What are the less risky options? I was going to go to Panama for the UCMSC, and at the last minute I was told about the UCMSC being available here.

Prior to UCMSC, my foot pad felt like I had a piece of duct tape across it, a very tight feeling. The numbness/tight sensation has lessened a lot...let's say it was a 10 on tightness/numbness, I'd put it at a 3 now.

When I lay down, I'm now able to move my legs on their own, no hands needed. I also am noticing more control of my upper body.

The stem cells came from a company called Biogenix.

Hope this helps you!
Tiff
Tif
Family Elder
 
Posts: 104
Joined: Fri Sep 13, 2013 8:34 am

Re: Domestic Stem cell therapy

Postby ElliotB » Wed May 23, 2018 12:05 pm

"What are the less risky options?"

Many diets seem to work and of course there is the Coimbra high dosage vitamin D protocol, high dose Biotin and there are many other safe choices...

As there have been serious illnesses and a number or deaths associated with stem cell therapy and stem cell therapy is at its infancy (and still basically unproven in its effectiveness), it should probably be a treatment of last resort at this time. The FDA issued a warning last year.
ElliotB
Family Elder
 
Posts: 1374
Joined: Mon Feb 03, 2014 5:08 pm

Re: Domestic Stem cell therapy

Postby Tif » Thu May 24, 2018 10:29 am

I looked into doing a Biotin clinical trial months ago, but I wasn't eligible due to walking requirement (TW=25<40 seconds)...so I nixed that idea. I take calcium supplements...

This is not 'old', slow dividing mesenchymal stem cells from my own fat cells, or from bone marrow. They are stem cells from a healthy births umbilical cord derived mesenchymal stem cells. Their division is much more prolific, than my own.

I looked up studies, read them and their results. It appeared to me that the UCMSC were the way to go. Studies from around the world.

When you end up in a wheelchair with SPMS, and see no future, 'last resort' treatment becomes your option.

'(and still basically unproven in its effectiveness)'-- guess I'm here to help prove out one case -Mine.
Tif
Family Elder
 
Posts: 104
Joined: Fri Sep 13, 2013 8:34 am

Re: Domestic Stem cell therapy

Postby ElliotB » Thu May 24, 2018 1:56 pm

"When you end up in a wheelchair with SPMS, and see no future, 'last resort' treatment becomes your option. "

You are correct, but..

IMHO, here are a couple of things you can try immediately without risk:

1. High dose Biotin (100mg capsules) are relatively inexpensive and easily available (Amazon has many different brands to choose from). You can easily do it on your own. The recommended dosage is 300mg per day, 100 mg 3 times per day. I believe a month's supply is under $50.

2. Read The Wahls Protocol book by Dr. Terry Wahls. She was in a wheelchair but is no longer. Most of her protocol makes sense to me and many, many have reported success. I started on a diet similar to hers that I came up with based on research I did before reading her book. I am happy to give you basic guidelines that I follow (I have been on a high good fat diet for about 5 years).

3. High dose Vitamin D3. Vitamin D3 is very, very inexpensive. You can do this protocol on your own if you don't want to use a doctor but you should have blood work done every 3 months at least for the first year or two. I am happy to give you basic guidelines that I follow (I have been taking high dosages of D3 for about 3 years.

4. If you do all of the above, you should also consider a diet rich in probiotics (includes homemade fermented foods and drinks as well as store bought supplements).

5. As much exercise as you can handle.


With regard to stem cell therapy, like all protocols for MS, it works for some but not for all (although the clinics will not tell you this). Is it worth a try? If you are really at the end of your rope and not willing to try anything else, yes.
ElliotB
Family Elder
 
Posts: 1374
Joined: Mon Feb 03, 2014 5:08 pm

Re: Domestic Stem cell therapy

Postby Tif » Thu May 24, 2018 8:27 pm

Hi,
I'm absolutely interested in the things you mentioned.

What is considered a high dose for D3?

I'll order some Biotin, thx.

I've started probiotic capsules. i haven't done fermented foods.

What does the outline of your diet look like? I do fruits, veggies, cashews, pistachios, almonds, walnuts, sunflower seeds, fish, shrimp, chicken, avocado.

I'm only noticing improvements after the UCMSC's.
Tif
Family Elder
 
Posts: 104
Joined: Fri Sep 13, 2013 8:34 am

Re: Domestic Stem cell therapy

Postby ElliotB » Fri May 25, 2018 3:27 pm

I will post detailed info over the weekend, I am curious though, are you gluten free?

Can you post more detailed info about your procedure?
ElliotB
Family Elder
 
Posts: 1374
Joined: Mon Feb 03, 2014 5:08 pm

Re: Domestic Stem cell therapy

Postby Tif » Fri May 25, 2018 7:17 pm

No, I'm not gluten free- I looked up gluten foods and the tempura and teriyaki sauce got me.

The procedure was super easy. 1. The UCMSC's are shipped on dry ice to the Dr.
2. They put an IV in my arm
3. Pushed saline through
4. Over a 3-4 minute period they inject the UCMSC's
5. Pushed saline through
6. Take IV out, and that's it.
7. Then I hung out for 1/2 hr or so talking with friends that went with me...
Tif
Family Elder
 
Posts: 104
Joined: Fri Sep 13, 2013 8:34 am


Return to Stem Cells

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service