I have not progressed worse.
I might not have gotten worse if I didn't do anything at all. I have had some kind of cold/virus/cough since receiving treatment. Being "sick" for so long has dappened my spirits and made it harder to focus on being "healthy" like pushing myself to walk or bike or even do daily chores. Also been hard to follow a good diet...just want to eat chicken soup out of a can.
Walking was very difficult and it isn't any better. (or worse) I suspect I was going "downhill" before Campath, so perhaps it stopped that progression. It seems I could give in to a wheelchair or scooter but since technically I can get around, I am trying to avoid that.
But Campath is one of the few that postulated some would actually reverse their symptoms. I think it has been very hard to push for that (i knew it wouldnt happen on it's own) because I have been sick for most of the time---My immune system is only 1/2 back to normal (evidenced by labwork) and it's 6 months till the next infusion. Catch me on those few odd weeks here and there where I am actually free of a runny nose & cough, and I might be able to recognize some positive aspects--it's just very hard to deal w/ both the walking MS everyday challenge & constant flu/cold symptoms!
That's definately affecting me psychologically.
I re-read David's story and know that if I could just get out and move I would see better results!
Conversely, I read Craig's story (after I started posting on the stem cell subject) about his stem-cell experience & it sounds really scary and same infection problems!!!!!!! http://www.mult-sclerosis.org/craigsstory.html