I am going for it

Discuss stem cells, adult and embryonic, and their therapeutic potential for MS here.

I am going for it

Postby carolew » Sun Jun 14, 2009 7:10 am

I have been accepted in Cologne, Germany (still waiting for the exact date). It is a rather simple procedure. They remove some of my bone marrow early one week and give the stem cells (that they have filtered out) the next wednesday.
I too, figure I have nothing to loose. No chemotherapy, no embrionic cells from anyone else nor any animal. The clinics are clean and I know the procedures: bone marrow extration and lumbar tap. It is not proven, I know but I want to try it. If it comes to America in 5 years, then I will have another one....

If one checks the advisory board of the XCell clinic where I am going, there are two americans from Orange County!!! It's a business!!
I will keep you posted... Carole
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Postby carolew » Tue Jun 16, 2009 4:10 am

I am booked for the stem cell procedure starting July 27/09. Can't wait.
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Postby gopi » Tue Jun 16, 2009 5:26 am

Hi,

What is the estimated cost of the procedure in US $ ?

Thanks
Gopi
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Postby carolew » Tue Jun 16, 2009 2:08 pm

It is 7545,00 euros... about 11.000.00$ Canadian... almost the same as American dollars. That does not include the trip itself, hotel, meals, etc.
Look up XCellcenter in Germany...Carole
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Postby kath2me » Tue Jun 30, 2009 2:01 pm

Carolew,

the best of luck to you, i will be very anxious to hear your results. I was just reading in the paper, a lady who lives not far away from me, was on her way to Mexico to have this same procedure done, I hope they write again to let people know how she made out, she is currently using 2 canes to get herself around. This would be a wonderful happening for people such as ourselves, do you know, is our country not up to or allowed to do things such as this, I saw you wrote 5 years IF we do? Anyway Carol, god bless and my thoughts will be with you in July
Kathy
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Postby carolew » Tue Jun 30, 2009 5:54 pm

Here, in Canada, it is done as part of some studies (same as in the states) but they use a lot of chemotherapy before they give you back your stem cells. Dr. Freedman, in Ottawa, has done this procedure in the past. Unfortunately, a man died and Dr. Freedman stopped doing the procedure (part of a study, for the sickest and the ones most resistant to treatment ). In Germany, they do not wipe out your immune system before giving you back your stem cells. So, I will try it... more to come. à
Mark's friend on another site, is doing quite well after going to Israel for a similar procedure.
I just said 'if it comes in 5 years ' speaking of the procedure to come here simply because Barrack Obama seems to be interested in stem cell research. I do not want to wait that long.
take care all, Carole
PS, thanks for the wishes
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STEMCELL TREATMENT AT GERMANY

Postby seeva » Wed Jul 08, 2009 5:59 am

HI CAROLEW MYnane is SEEVA from SYDNEY, AUSTRALIA. I am also accpted by XCELL CLINIC IN GERMANY. but the rep. pohne and told me to pay a advance of 1,000.00 euroes up on reciving thier letter. But i want to see my NEURO about this treatment next month. before that how can i pay a payment for them. my treatment date in mid NOVEMBER. PLEASE MEMBER let me know that have you paid any deposit money for them. if so when did you pay them.

REGARDS
SEEVA :roll: :roll:
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advanced payment

Postby carolew » Wed Jul 08, 2009 12:52 pm

This is surprising to me. I am going there in 2 weeks and no one asked me for money.... this is different. I do know that Israel asks for a down payment up front. I don't know what to make of the request they sent you. All I would do is call them (we have their numbers I believe on the XCell site. Let us know what pans out.. Carole
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STEMCELL TREATMENT AT GERMANY

Postby seeva » Wed Jul 08, 2009 4:03 pm

HI CAROLE THANKS FOR YOUR REPLY POST.I WILL CONTACT HE HOSPITAL AND FIND OUT ABOUT THIS PAYMENT. BEST OF LUCK TO YOU. WE WILL BE VERY ANXIOUS TO HEAR YOUR RESULT. IN SDYNEY AUSTRALIA FEW M.S FRIENDS WANT TO GO TO XCELL CLINIC. ALL TE BEST FOR YOUR TREATMENT
REGARDS :roll:
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Postby sh8un » Wed Jul 15, 2009 11:10 pm

hi carolew
hope all works out for you. just a quick question. can you get any of this covered. do you have blue cross at all? can you argue that you need this treatment but can not get it here and so you have to travel out of country for it? it would be hard cause i think you have said that there is nothing to back the clinic's promises up but i just wonder about that...good luck. i know you'll keep us posted.
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Postby carolew » Thu Jul 16, 2009 5:28 am

Hello Shaun, no, there is no coverage. I can only claim it on my income tax return next year as a medical expense. Take care, Tâ-Tâ, Carole
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Postby carolew » Tue Jul 28, 2009 8:39 am

´Hello everyone. I am now in Germany. The bone marrow extraction was done yesterday and it was no fun. Tolerable at the end but unpleasant. Tomorrow is the lumbar puncture. They aspirated 20cc of bone marrow and the neurosurgeon kept saying it was so thick and not dripping well. He had to get a bigger trocar to let the marrow out. Hope it is full of stem cells.... will keep you posted, Take care , Carole
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Postby carolew » Thu Jul 30, 2009 4:12 am

Great, the LP was done yesterday. All went really well. No pain what so ever this time. Now, i have to stay quiet today. They collected 2,1 million stem cells with 93% Vítality, that is very good for me.s
I am just stiff now from staying in bed so long but that is nothing. I will be better tomorrow and we will go to the zoo!! Take care all. Carole
Last edited by carolew on Tue Aug 04, 2009 6:40 am, edited 1 time in total.
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Postby Lyon » Thu Jul 30, 2009 5:49 am

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Last edited by Lyon on Sat Nov 26, 2011 11:04 am, edited 1 time in total.
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Postby patientx » Thu Jul 30, 2009 6:43 pm

Good luck, Carole. Hope all goes smoothly.
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