I don't have an EDSS score. I've not yet settled on a primary care physician.
The infusion was in Athens, because Dr. Slavin & his team aren't allowed to administer the infusion in Israel at the moment. It's a political thing. Dr. Slavin's clinic is in Tel Aviv, and he & his team do the bone marrow extraction at their clinic. 6 to 8 weeks later the infusion is in Athens.
Hi Ariehs, thanks for this interesting info.
Would you know if this political thing is still the case now? Or now possible to do the full HSCT treatment (including infusion) in Dr Slavin's CTCI clinic in Tel Aviv? Thanks, Steffi
Steffi, allow me to answer your question, since you sent me a pm with the related question(s), and it is good that my answer is accessible to everybody.
The way I understand this topic, it talks about the experience of people that received mesenchymal stromal cells (MSC - there are few topics about them on this forum), so this is not HSCT, those are two different procedures. When I was at Hadassah, they stored some of the cells harvested from my bone marrow in order to maybe latter use them in the procedure described on this topic. Namely, back then Israel Health Department did not allow their application in Israel, so they were administered on other locations, amongst them also in Greece.
I made a little inquiry the last couple of days, and it seems that now it is possible to receive both of those treatments in Tel Aviv. But they prefer to use the non-myeloablative (lymphoablative) HSCT for patients with very active inflammatory disease confirmed by MRI, and such a treatment can be combined with MSC.
I personally did not try MSC because my neurologist thinks that now I have time and should wait a little to see how the things will develop.
I do not know whether the HSCT still can be done at Hadassah and I do not know the price of the procedure in Tel Aviv.