hey ariehs, good to see you posting again, but sorry to hear that the MSC's didn't work for longer... I think that pretty much everyone who frequents the stem cell threads here are looking into HSCT as a way to permanently stop their ms.
It's a bummer to hear that Slavin has acted like that, as I was thinking of using his place for HSCT if it came to it...
HSCT is not a miracle and it does not help everyone. It most likely helps if you have active lesions, otherwise your chances are close to zero
Wow, that’s a very brave statement!
I had no active lesions and I underwent HSCT in late 2006 – early 2007 in Hadassah, Jerusalem, under prof. Slavin supervision. Ever since then, I am totally drug free and my EDSS fell by at least 1 – I am saying at least, because it is hard for my doctor and me to asses my current EDSS (before HSCT I was 6.25) because after the HSCT i broke a leg, due to that nasty fracture my left leg is 3 cm shorter, so the balance is even more damaged, not to mention that leg that experienced a bad fracture cannot never be the same regarding strength. But I can walk on my crutches for 1,5 kilometers, sometimes even more, i once managed to walk for one hour without stopping (before HSCT i walked around 300 meters, sometimes much less) I can swim without rest 2 kilometers, it takes me 40-45 minutes for that (before HSCT 50 meters), I cycle one hour in my room, and after that I box and do 20x60 pushups.
It is not my attention to brag, I am just trying to illustrate how I benefited from HSCT.