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 Post subject: I'm going to Dr. Burt..
PostPosted: Mon Dec 21, 2009 12:11 pm 
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Posts: 265
Location: Chicagoland
I've been recommended by my neurologist to see if I can get into Dr. Burt's stem cell study at Northwestern.
I will be randomized into either the Tysabri or the stem cell arm of the study. I'm hoping for the stem cell, but Tysabri would be my next move anyway. But still I'm hoping for the stem cell arm.
I'll be seeing Dr. Burt, and starting pre testing on dec 30th.
I'm really excited to get on with this. My cognitive function has really been rough lately. If I was the type of person who embarrassed easily...

Since the study is not Pharma sponsored, I have to get my insurance company to go along. That may be a battle. But really the insurance co spends over 60,000 a year just on meds, the stem cell arm is expected to cost about 200, 000. That's just 3 years of meds, nevermind the hospital stays now and then.

Wish me luck everyone. I have a friend who was in the phase II, she's doing great, that was about 6? years ago. At the time I thought she was crazy, but I also never thought I would become this non-functional.

I'll post again after the 30th!

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PostPosted: Mon Dec 21, 2009 12:22 pm 
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Location: California
Good lUck!! Keep as posted!


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PostPosted: Thu Feb 02, 2012 3:22 pm 
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How did it go? I just met with them myself.

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PostPosted: Sat Aug 04, 2012 7:17 am 
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Any follow up?

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"A gun is a tool, Marian; no better or no worse than any other tool: an axe, a shovel or anything. A gun is as good or as bad as the man using it. Remember that." -- Shane

Who is John Galt?


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There are no new unread posts for this topic. Just got out of meeting with dr burt, and now have decisions

shucks

13

1980

Thu Feb 16, 2012 10:15 am

shucks View the latest post

There are no new unread posts for this topic. Dr Burt and waiting forever

Vikingquest

12

1648

Wed Aug 29, 2012 7:52 pm

shucks View the latest post

There are no new unread posts for this topic. Insurance gave me tHe final no for Burt trial.

shucks

1

971

Sun May 20, 2012 12:06 pm

Pesho View the latest post

 


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