I'm going to Dr. Burt..

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I'm going to Dr. Burt..

Postby msmything » Mon Dec 21, 2009 12:11 pm

I've been recommended by my neurologist to see if I can get into Dr. Burt's stem cell study at Northwestern.
I will be randomized into either the Tysabri or the stem cell arm of the study. I'm hoping for the stem cell, but Tysabri would be my next move anyway. But still I'm hoping for the stem cell arm.
I'll be seeing Dr. Burt, and starting pre testing on dec 30th.
I'm really excited to get on with this. My cognitive function has really been rough lately. If I was the type of person who embarrassed easily...

Since the study is not Pharma sponsored, I have to get my insurance company to go along. That may be a battle. But really the insurance co spends over 60,000 a year just on meds, the stem cell arm is expected to cost about 200, 000. That's just 3 years of meds, nevermind the hospital stays now and then.

Wish me luck everyone. I have a friend who was in the phase II, she's doing great, that was about 6? years ago. At the time I thought she was crazy, but I also never thought I would become this non-functional.

I'll post again after the 30th!
Be kinder than necessary, for everyone you meet is fighting some kind of battle..
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Postby LR1234 » Mon Dec 21, 2009 12:22 pm

Good lUck!! Keep as posted!
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Re: I'm going to Dr. Burt..

Postby shucks » Thu Feb 02, 2012 3:22 pm

How did it go? I just met with them myself.
"A gun is a tool, Marian; no better or no worse than any other tool: an axe, a shovel or anything. A gun is as good or as bad as the man using it. Remember that." -- Shane

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Re: I'm going to Dr. Burt..

Postby shucks » Sat Aug 04, 2012 7:17 am

Any follow up?
"A gun is a tool, Marian; no better or no worse than any other tool: an axe, a shovel or anything. A gun is as good or as bad as the man using it. Remember that." -- Shane

Who is John Galt?
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