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 Post subject: undiagnosed forum????
PostPosted: Fri Sep 11, 2009 7:58 am 
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How about a forum for those of us still looking for a dx? I know there are quite a few of us in here, and whether the eventual diagnossis is MS or not, a forum to discuss our journey, or to ask questions of those who've experienced similar issues could be beneficial.

Good idea? Bad idea? Comments?

Thanks,
Mike


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 Post subject: Re: undiagnosed forum?
PostPosted: Sat Sep 12, 2009 5:42 pm 
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Hi Mike,
I have forwarded your suggestion to the administrators.

NHE


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PostPosted: Mon Jan 04, 2010 1:33 pm 
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Would it be appropriate to post the name of another web site in here that has an area for the undiagnosed (limbo landers)?


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PostPosted: Mon Jan 04, 2010 2:23 pm 
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as far as i am concerned, go right ahead - we are forever pointing to external links here, i don't think we are trying to get a monopoly on un-dx'd traffic here LOL correct me if i'm wrong, NHE!


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PostPosted: Tue Jan 05, 2010 12:51 am 
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Hi Mike,
The ThisIsMS site had a technical problem for a while that prevented the addition of a new forum. This problem has just recently been fixed! I have gone through my old emails to the site's administrator and resent him the suggestions for a couple of new discussion forums. Your suggestion for an "Undiagnosed" forum was among them! Hopefully, this will get taken care of fairly soon.

NHE 8)


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PostPosted: Fri Sep 09, 2011 7:40 am 
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This that would be great, Im one of those who are getting closer to MS diagnosis. Also started taking .R - Alpha Lipoic Acid, Acetyl L-Carnitine and Nigella Sativa Oil.


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PostPosted: Thu Oct 06, 2011 11:00 am 
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Thanks NHE, now that I am diagnosed this isn't as important to me, but I think it would be helpful for others.

Mike


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PostPosted: Sun Nov 20, 2011 10:05 am 
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Hi!


I've just realized that there isnt a "Limbolanders" board, it is so important as there are loads of people on another site having a lot of the symptoms but clear MRIs, this is such a relevant issue to us all, because why is that happening????


It would be a fantastic opportunity for those that find themselves in such a distressing place, to learn about misdiagnosis such as Lupus, Lyme Disease, Hughes Syndrome, Upper Cervical care, Candida/Candidiasis and I'm sure that there is many others.

Its a great idea a great post

_________________
Sometimes we need to agree to disagree
freedom of speech and adult debate is so important for us to learn


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