Just signed up today for this forum. I have a great MS Neurologist who gave me some tips before starting Tecfidera. I have talked to others following the same tips and we are all doing pretty well.
My Neurologist told me to take a full enteric coated aspirin with my Tecfidera. I stopped taking the heart aspirin and changed for the full 325mg dose.
I was told by the research group at my Dr Office that toast and peanut butter or oatmeal or both won't do it. Breakfast needs the proteins, the fats, and the absorption of the suggestion they gave me below:
Breakfast: If you could eat a sausage egg mcmuffin with your tecfidera you would have the food groups and absorbtion that helps with alleviating stomach pain and bowel issues. I bought the Jimmy Dean already made and frozen breakfast sandwiches. 4 to a box individually wrapped. 1 1/2 min on defrost in microwave and then 60 seconds on high and let sit for one minute. I had choices, the store had the same with croissants or biscuits. On the weekend, my husband and I make our toast, eggs, bacon and I a good to go.
Personally, I take all my other AM meds 1/2 hour before eating my breakfast with my Tecfidera.
We eat dinner around 6pm. At 5pm I take my GERD medicine, Prevacid, so I have that in me before I eat supper and take my Tecfidera evening dose during dinner.
I take the rest of my PM meds at bed time.
Things I have learned the hard way. A bowl of soup, even the chunky soup was a rough night for me. Too much liquid, even with crackers. I ended up having to make 3 pcs of toast and eating that several hours later because my stomach was not happy. Won't make that mistake again
Side effects I am feeling: About 5 - 7 hours after taking the morning dose is when I get some of the flushing along with light nausea. Only 3 times over the past 4 weeks have I had to take a Zofran under my tongue to stop the nausea. Interesting though, is all 3 times was after I went up to the 240mg twice a day dose.
In the AM I usually only have one bowel movement a day, since being on this med, I have noticed I am having anywhere from 3 - 5 all in the morning. No issues yet, but I am armed with everything I need if I need help with that.
I have talked to some friends that took their pill on empty stomach and they aren't doing that again. It seems that the complete meal at the same time for both dosages seems to help with the side effects not being as pronounced. I don't get any evening side effects as long as I eat well at dinner. Like I stated before, the mix of the protein, starch, carb makes it easier for absorption as I have witnessed and am hearing from others too.
I have severe GERD and Gastric Paresis too, I already know not to eat and then lay down all the way for at least an hour after I have something so I don't work against gravity. One member stated that they weren't hungry, I agree, my appetite is much less which wouldn't hurt me or my MS on a lot of other areas.
Blessings to everyone! I will keep reading and report any new developments.