This Is MS Multiple Sclerosis Community: Knowledge & Support

This is getting to be tedious arguing/discussing information that we don't have and probably never will have!

However, here's my opinion based on information I do have --

My clinical trial site was 450 miles ONE WAY and i was never reimbursed for anything during the entire time I was in the trial. Airfare, hotels, rental cars, food, gas, wear and tear on my car when I drove because the weather was so bad I couldn't get a flight, out of pocket medical expenses for exacerbations, treatment of side effects for the vaccine reactions, and my time off work.

I also had to deal with the arrogant behavior of the clinical trial neurologist who, by the way, never bothered to spend the time for an exit interview with me when the trial was shut down.

Given all this, if given the chance to re-enter the trial for this drug, I would in a heartbeat! WHY? Because of all the MS disease-modifying drugs I have tried, this is the ONLY one that has slowed down the rate of exacerbations I have had since I was diagnosed with this disease in 2001. MY disease, my choice. No one but me can make that decision.

Jane - I would have to go pull that data for you. I do not remember off the top of my head. I was not directly involved in Tysabri Trials, just collected data.

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“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford

..

thanks for the reminder Lyon....

Condescending does not become you...or are you intentionally trying to piss me off?

Done with this ....

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“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford