Lyon wrote:Thankfully this is one subject that I'm glad I'm naive in! Jamie's just had the one exacerbation back in Feb of this year and come to think of it I don't think she's been sick once since then and OBVIOUSLY living with me there is never a reason to be stressed outewizabeth wrote:I know that extreme stress can cause a relapse in me, and combine that with consuming plenty of junk food and it's a recipe for disaster.
Lyon wrote:... is "clonus" a typo? I've never heard that word before and can't figure out what it is.
Lyon wrote:Someone mentioned the other day that IF Opexa manages to get the mrtc detection process up to 95% that would be akin to a test to detect MS and that seems true to me.
Lyon wrote: I hope your results defy what seem to be the odds flipflopper!
Lyon wrote: We're going on the 27th of December so if anyone has any questions I might ask them, let me know.
Lyon wrote:Hi flipflopper,
The person I talked to said that "they" (evidently someone from Opexa and someone from each remote facility) have an audio conference every week and going into the trial they were expecting 55% mrtc detection and 45% not, more or less 50%, and that they are experiencing right around 50% mrtc detection.
Lyon wrote:It went really well.....and I didn't get lost on the way this time
I thought they were only going to redraw the blood, do the peg and numbers tests but they re-did EVERYTHING including the EDSS assessment. We left before the numbers were tallied but I get the idea that it's going to be lower than the 3.5 she got last time.
I also found out that in case of a relapse during the trial being unblinded and going on Tovaxin is not an option. The option is that you can be treated with steroids and stay in the trial. Things were too busy to ask but that of course begs the question, how much is steroid treatment going to affect isolating mrtc's the next time if steroids really do "mask" mrtc's?
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