December 27th ’06: Endured that fun little blood test to see if I had MRTCs (Myelin-Reactive T-Cells).
January 5th ’07: Got the good news that I do make ‘em, although I never got any feedback about quantity/quality.
January 18th ’07: Draculette took the bazillion gallons of blood to make my vaccine. At the time, I was disappointed that ten weeks was cited as turnaround time on collection and “shooting.”
Obviously, my ten-week mark passed at the end of March…
May 2nd ’07: Vaccination Day at last!!!! 6:15 am: Bee-bopped onto I-71 for the schlep up to Columbus. My MRI was delayed due to an emergency… that was unnerving, to say the least! But I stayed calm and made a note to request all future MRI’s be scheduled after meeting the doc and the caseworker. I did all that paperwork “in the last four weeks, how would you compare this, that and the other…” blah, blah, blah. The walking stuff was no problem since my foot is soooo much improved since my December 13th fall off my ladder (nothing MS-related… just me being my typical PAIN self and not wearing my shoes like a sane person). And that peg test was okay, too.
But one of these days, I want to meet the yay-who that designed that number thingie and the HAL-9000 sound-alike who did the recording. There oughta be a special punishment for those two...
Seriously, though, I really do think that number thingie would be much easier if they had a variety of voices recording. I could even take HAL-9000 if he were followed by a bunch of other different tones. I just can’t help but expect him/it to conclude the session with, “I have the utmost enthusiasm for our mission, Dave.”
Okay, so after three big cups of orange juice, I was okay for the blood draw. Excellent work this—not the faintest trace of a bruise! That’s some record for me!
Then it was time for the shot(s).
I met the nurse practitioner who takes over this phase of the session.
I had to show my driver’s license to prove it was me and not some imposter who just wants to… get shot????
It tickles to get circles drawn on the backs of your arms to easily identify the injection sites. The nurse told me the backs of the arms are used to assure plenty of fatty tissue. It went right over that Skinny Minnie’s head when I replied that any place she hit on me would be fatty tissue…
But then the *?!%^* digital camera decided to die on us. Three batteries later, it was decided the * thing was in Sports Mode (whatever that is) and would be okay.
It’s hard to smile when you’re wondering if the delayed MRI with its glitch and then the crazy digital camera wasn’t some sort of omen. But since I’m a stubborn old broad, I ignored some sort of cosmic message and told the nurse to get on with it.
I think the alcohol rub wasn’t dry on my right arm because it stung like crazy. Nothing at all for the left. A big ho-hum, really.
Five minutes later, there was nothing to indicate that I’d been shot.
Nothing an hour later, either.
So it was home again! I kept waiting for the twenty minutes later run-over-by-Mack-truck sensation some patients report but it never happened. Nuttin’!
No side effects that I notice! That was good—I usually react to anything and everything pretty badly.
Now for either my Extreme Suggestibility, Placebo Effect or Whatever:
Beginning that night, I noticed that for about 5 – 7 seconds every two hours that my vertigo disappeared completely. The whole world looked/felt really correct for the first time in four years.
Who knows what this is? Whatever, I’m very grateful and ready for more of it!
Next shot(s): May 30th! Yippee!
I got my second jab(s) on Wednesday, May 30th. And I swear, people, if I’m getting the placebo, it’s the Mother of All Placebos, no doubt about it!
After my first one(s) on May 2nd, my vertigo markedly subsided within 48 hours. Now it still isn’t gone completely... but I can tolerate watching people rock in rocking chairs, watch the trains go by and enjoy the occasional glance of the ceiling fan blades without feeling like I’m jammed up a tree on a 45° angle!
The fatigue is rapidly, rapidly diminishing, too. In fact, I can happily tell the difference between “sleepy” and “tired” again and no longer feel that taking another step this far <--> will trigger a whole body implosion with my teeth falling straight out of my head.
And after the shots last Wednesday, my four-year-old tingles are fading away, too. I still have some of ‘em on the right side of my mouth, the palm of my right hand and that big old fat pad on my right knee. But all the baddies on my left side are gone completely. Really. Completely!! GOOD RIDDANCE to ‘em, I say!
Now I could almost agree with a suggestion that I’ve talked myself into getting better but...
... the clinical title of that terrifying/aggravating eye jump... yeah, that little devil. Well, I had my last one a few hours after my first injections and none since. NONE.
I can’t tell you HOW great it is to sit down at my piano and inflict a little tune and family and f(r)iends without losing my place in the music so totally with that eye jump. And since that sucker’s involuntary, I’m convinced I’m getting the real juice. It just has to be so!
Next jabs—June 27th!
Jane the Pain