Loobie wrote:I am getting impatient again with the extension. I just posted in the general discussion about recent changes in my ability to void urine and am just absolutely maddenned with my constant downhill slide this year. During this trial, I have had more stuff get worse than the five years prior combined. I know there is nothing many of us can do, but being in this trial and not getting the drug is like the world's biggest tease. I know I don't know if I'm getting it or not, but as I've said before, if I find out I have been getting it, I'm not impressed.
If I find out I have been getting the goods, I'm not going in the extension but am going to opt for Tysabri or LDN or something. I just hope I'm in the placebo group because I'm ready for a change soon. I don't know if I can take another year of this.
Loobie wrote:My year is up in Mid/late November of this year. Very soon as far as the trial goes. I asked my coordinator about my "code numbers" and mine ends in 0010. He said I was the tenth person dosed, so I imagine I'm at the front of the line for the extension to start. That is good! Only 3 short months away, but it feels like time has standing still since my last dose. Football season is about to start and I'm excited to see what the boys in black and orange are going to do!
Loobie wrote:The Bengals!.
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