Thanks for the post. Sounds like you have a great team. I have always been impressed with the amount of info sharing I have received from "Doc" and team. I have never received the "I can't share that with you" response, in fact I have often been amazed at the openness of the staff. They are the reason I will strive to continue into the extension.
All the Best and Merrry Christmas.
I realize this is an old thread, but wanted to bring it back up to discuss.
I get the "no sharing of info" and no talking about others in the trial at my site. They won't answer questions and I've been told not to discuss openly on any forums about the trial.
You are lucky Lars that your doc and staff will be open and honest with you. I can't get anything. This site has been the best place for me to ask questions and get answers.
Like I said in my other post, I feel alone.
I too started in this trial for the extension study, for selfish reasons as well (I have failed everything else and I am looking for something to help treat the MonSter disease), and to help find something to treat this disease for others.
I am a little frustrated right now as I feel like that cartoon of the mushroom....in the dark ...
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford