Extension blood draw rescheduled!

A board to discuss Tcelna as a treatment for Multiple Sclerosis

Postby Loobie » Tue Apr 22, 2008 5:16 am

I have my fingers crossed too. It sucks to feel like you are just left hanging. It seems that my experience with feeling like I was waiting forever was far from unique.

I now have my second dose scheduled for 4/30. I have been doing ok since the first dose. I started exercising again right before my first dose. I can still use my Bowflex on my upper body, but my legs simply don't want to work. I tried for two weeks, but while my upper body showed improvement (I could increase weight over time), my lower body went the other way. I can walk very stable for about 100 yards now before the weakness around the knees and the calf tightness take over. I'm in good spirits though since Tim reminded us that we should expect a slight (hopefully temporary) downturn until the 3rd injection. Since it's not going way down like a full blown relapse, I'm just hanging tight waiting for next Wednesday.

I cannot freaking wait until I have my third dose in me to see if it stops my progression. I have had some very sobering moments at work lately where I have not been able to walk where I needed to get to in the plant without being really well rested. That part is scary no matter what I'm supposed to expect. If I could just eek out a good amount of time at work after my wife finishes school (she has 1 quarter after this one, and then the summer) we would be sitting pretty good financially. For some reason I don't think my MS considers my "schedule" when deciding when to show up.

Come on Tovaxin and do your thing!
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Postby av8rgirl » Tue Apr 22, 2008 10:22 am

Good luck Sweetyhide! I am excited for you to get started! Looking forward to hearing more about the extension study!
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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