Yes, as a matter of fact there is!,
I don't know why (probably because I called Shannon Inman at Opexa), but my coordinator got a hold of me just today. Just like when I wasn't getting my blood drawn; I call Shannon, and poof, it's scheduled. Well anyway, my coord. called and said it is going to happen the third week of March. The 69 day manufacture they stated may be off a bit since Wednesday is the 69th day
. I don't know if they were BS'ing me about the 56 day culture and the 14 day manufacture, but maybe they sat on my bag of blood until they got some more people's blood to work with also. Hell I don't know. What I do know is that I'm going to see my Dr. tomorrow. I am having another relapse and may opt for steroids. Now that they have drawn me, they aren't worried about masking with steroids, so I bet that's what they do. I may not give them the option. If I don't stop the slide down the slippery slope I'm on, there may be no recovering. I mean four fucking relapses this year, damn!
My relapses don't hit me like a bat or anything. I don't know if anyone's do for that matter. I was getting ready for work today after a very bad Sunday (no energy at all; unusual) and I could barely make it up the stairs without stopping after making coffee. This normallly does not happen to me until very late in the day. I mean I have low energy moments after some physical exertion during the day, but this was basically first thing in the morning. So now we can put 4 relapses in my dossier for this blinded portion of the extension. Man if I quit having relapses, they are not going to have to use anyone but me to show efficacy of this drug. This year has sucked worse than anything I could have imagined. I'm getting real emotional too. I think it's starting to get to me bad. I mean we are now going to be 4 fucking months out from my year anniversary by the time I get my shots, and with their track record, I doubt that date also.
I have never felt even close to desperate in my whole life. I cried out of frustration this morning as I was preparing for work. I don't do that damn it! I'd just made my way down the stairs, was in the garage and couldn't bend over my car to flip the switch; you'd have to see the light in my garage to understand, and walking around my car (I know, real long walk) to get to it seemed so monumental after tiring out so bad just getting ready that I just dropped to the ground and started crying. I swear to Christ if they don't get this shit made up and up here soon I think I will pop like a zit. If there was some way that I could have any power in this circumstance I would exercise it like a scorned woman. I am so used to being able to hammer on people when they don't live up to expectations. I'm totally powerless in this situation and I simply don't know how to behave. After this trial is over, my MS is going to be 100% under my control like it was before. My Dr. has always gone whichever way I wanted to go as long as what I was talking about made sense. I even told him I was considering LDN one time and he didn't even bat an eye. My Dr. is not the problem. It's Opexa that's frustrating me at this point. I mean it was fucking Dr. Garces that gave me that bullshit about what day my Tovaxin would be ready. I'm sorry I'm being so rude, but I swear to God if the board of Opexa was in front of me right now I would figure out a way for them to feel what I've been feeling this last four months. All of last year was something I signed on for; not 16 weeks of delays. My apologies if I offended anyone with all my cursing.