Opexa News

A board to discuss Tcelna as a treatment for Multiple Sclerosis

Postby Lyon » Fri Mar 28, 2008 2:48 pm

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Postby Loobie » Fri Mar 28, 2008 3:03 pm

Well I will be bringing this up to my staff on Wed. when my first shots are due. I will let you all know if anything is said. Like I said, I'm losing my faith in Opexa as a viable commodity and am just about ready to pull the trigger and go to Baltimore.

Chris, that absolutely pisses me off. They think I'm SP also and if they tell me that on the day of my first shot, my first stop will be my lawyer's office. Not that we could get any money out of a struggling company, but maybe we could bury all the f'ers in terms of getting funding for anything ever again. That just sucks the hodge Chris, in this case with what's happened with me also, I can say I really do think I know how you feel and it's not pleasant. Jesus, to wait all this time for some possibility of getting your life back/somewhat back. I bet you are ready to beat some ass.
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Postby pvns2005 » Fri Mar 28, 2008 3:05 pm

Opexa
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Postby rainer » Fri Mar 28, 2008 3:33 pm

That does seem like a huge ethical breech. If the problem is funding they should at the very least let the patients know. If this is some ploy to shine up their results then its reprehensible. Hopefully there is another side to the story.
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Postby Lyon » Fri Mar 28, 2008 3:44 pm

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Postby pvns2005 » Fri Mar 28, 2008 3:52 pm

Opexa
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Postby Lyon » Fri Mar 28, 2008 3:59 pm

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Postby Loobie » Fri Mar 28, 2008 4:23 pm

You all know how I feel about taking Opexa at their word. I think I will call and leave Shannon a voicemail tomorrow and let her know what I've been reading on the internet. I bet I don't get a call back either. Somethin' 'aint right that's for sure.
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Postby Lyon » Fri Mar 28, 2008 5:15 pm

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Postby Sweetyhide » Fri Mar 28, 2008 5:17 pm

yeah! WTF?
I didn't get to read his original posts so I am wiggin' out a little here.
What is going on??
~Sweety
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Postby Lyon » Fri Mar 28, 2008 5:24 pm

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Postby Sweetyhide » Fri Mar 28, 2008 5:39 pm

Holy Cow!
I hope it's just a misunderstanding.
Wasn't even aware that you could get "booted" out of this trial.

Wonder why he deleted his posts? Was he REALLY pissed? could be why.
But I just went to his blog and it's gone too!
???? 8O ????
He sends me messages sometimes. Maybe he will again.

Honestly, I can't let this freak me out now. I am so close!
(waiting on the vampire people for the screening call and bucket-o-blood draw)
~Sweety
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Postby Lyon » Fri Mar 28, 2008 5:53 pm

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Postby Lars » Fri Mar 28, 2008 6:34 pm

Odd little mystery we find ourselves in. MS has taught me one thing, don't jump to conclusions. I will wait for this news and the missing posts to come to its conclusion.
Your friend in the great Tovaxin forum mystery,
Lars
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Postby pvns2005 » Fri Mar 28, 2008 11:26 pm

Sorry folks about the deleted posts. I decided to delete them because I did not want to mislead anybody and that seemed to be what was happening. (kinda like a witch hunt). I spoke with my Dr. and he spoke with the lead of the Opexa ethics board. They did not tell him if I was on the placebo or the real vaccine but he was told that after reviewing my trial medical records and MRI's that they felt that tovaxin would not benifit me if I was to be in the extension trial and that I have more brain lessions and I needed to persue other treatments. My data won't be released for another six months so I won't know if I was on the real vaccine. Sounds like to me that maybe my body did not take to the vaccine. I cannot say why I was pulled until six months from now. Regardsless, I am pissed because they could have told me sooner. today was the last day to make any medicare changes to my insurance until November. I will be going to John's Hopkins to be evaluated for the Revimmune treatment so I had to change everything on my insurance within 2 hours today so I was covered out of state with my insurance. almost slipped through another crack because of this short notice from Opexa. I removed my links to my blog because what's the point. If I start this revimmune protocol then I will create a new blog to let you guys and girls know what's up. Remember to keep in close contact with your Research Coordinator. Good luck to all you guys!!! :D
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