First extension dose today

A board to discuss Tcelna as a treatment for Multiple Sclerosis

Postby Sweetyhide » Tue Apr 15, 2008 1:47 am

I would call if I were you also.

I figured that I would get in to lifebloods schedule this month, but now I am not so sure.
April 2nd the lifeblood lady called me with all the questions. She said they were still scheduling for April so it would probably get in this month.
2 weeks and I haven't heard a word back yet.

I called my coordinator to see what the hold up is. She is going to find out for me. I have faith in her that she will figure it out.

You know the first phase went smooth as silk for me. Nothing in the extension has been on time, at all! Worries me.
~Sweety
Peace, Love and Potato Salad
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Postby ssmme » Tue Apr 15, 2008 4:43 am

What's Shannon's number at Opexa? Anyone know?

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Postby Loobie » Tue Apr 15, 2008 4:45 am

It is 1-281-272-1088 x 3405.
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Postby ssmme » Tue Apr 15, 2008 4:50 am

Thanks!! I'll fill you all in if I get a response. :)

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Postby ssmme » Tue Apr 15, 2008 5:01 am

FYI...I left a voice mail for Shannon but that number you gave me is a fax number. I googled the number on line and got to the office number. 1-281-272-9331

I feel like I'm starting the ball rolling now. Now I will concentrate on filing my tax return. Yuck!!

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Postby ssmme » Tue Apr 15, 2008 12:57 pm

OK guys. I left a message for Shannon at Opexa then miraculously received a phone call from my study site a couple hours later. A fax came in authorizing me for the extension study. I was told that LifeBlood will contact me soon but to not expect procurement before the second week in May. So do you all think it was my phone message or just a coincidence. Hmmm. Either way I'll take it. :)

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Postby Lyon » Tue Apr 15, 2008 1:04 pm

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Postby ssmme » Tue Apr 15, 2008 1:09 pm

Good idea Bob. Be armed with all the phone numbers so that after your wife's final visit you can start hounding them for the results. I think the squeaky wheel gets the oil with this study. Don't wait as long as I did.

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Postby Lyon » Tue Apr 15, 2008 1:15 pm

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Postby Loobie » Tue Apr 15, 2008 1:16 pm

And you guys all thought I was nuts around X-mas. The EXACT same thing happened to me after I called Shannon. Read my posts from back then. I thought I was being a conspiracy theorist, but it's also working for others. Someone is sitting on their ass somewhere and Shannon needs to call them on it and ax their behind! If people keep bugging Shannon, hopefully she will "fix" where ever/who ever is the problem.
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Postby Lyon » Tue Apr 15, 2008 1:20 pm

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Postby Loobie » Tue Apr 15, 2008 5:55 pm

Bob, you said you weren't going to say anything........
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