patrickm wrote:
go Jane!!
I've been really lucky, but I concur. Life's too short and we're all too F'd up to mess with a crappy neurologist. Assuming they ALL deserved it, I applaud your vigilance...
and trigger finger!
From what I've read on that other MS board I frequented for such a long time before I was mercifully directed here, I'm convinced my experience with neuros is far from unique.
#1 was listed on one of the MS websites as THE big cheese for MS here in the Cincinnati area. He gave me exactly five minutes of his time, dismissed what I had to say about the therapy option I wanted to check into, and left his nurse to deal with the "collateral damage." But the thing that really stuck in my memory was how his entire staff looked at him with that glassy-eyed wonder so much like the Manson Chicks gave old Charlie...
... I can't seem to remember the reasons I struck 2-4 off my list... I think it may have been some high-handed assumptions that I could drop everything and re-schedule at their convenience on a moment's notice; turnabout was never fair play, of course--requesting changes from my end meant delay of months... ugh... so many of these quacks need swift kicks up the backside...
#5 was absolutely THE failure to communicate. I'm sure this gal is brilliant--but she needs to confine her brilliance to a lab and not inflict herself on people. There's nothing like being scolded at my age. I stopped taking Avonex in April '07 so I could be "washed out" and ready for Tysabri as soon as was possible. I understand now that she's working on another therapy plan--why else would she dismiss Tysabri with such venom? Anyway, I found it insulting that she assumed I wasn't serious about my therapy--I, so anal I injected at the same minute/hour each week--without fail--plumb sickening.
MS patients have to have neuros they can work with--I'm VERY lucky to have that now (although he has needed a swift kick once--and got it--and benefited from it a great deal, to my way of thinking).
Of course, it isn't always enough to simply find another neuro--when they step out of line in a bad way--like Her Highness did with me--sitting down and writing up a complaint is most satisfying.
I like to think Her Highness's decision to return to NIH was somehow tied up with my letter to her superiors... probably not true but worth the giggles. Often.
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