Since it has been all week (thus over 4 days
), I am going to attempt to describe some of what has been going on with me. It's all been subtle, as we all probably knew it would be since it's not active symptom treatment. My first notice of some improvement was my trip to Atlanta last week. I posted a little bit about it, but quite frankly it was kind of monumental. In recent history (the past 4-5 months) I have had a real issue with walking any distance at all. It used to just 'take me down' so far and I could deal with it. Like I would go from 100% of normal and it would take me down to 50%. The thing about was it would stop at 50%. I could keep up my activity level and I would not go down any further. So I could walk for a while, get down to the 50% level and keep walking, albeit with a very noticeable limp and drag from my left leg. It was always the left and it always started with knee area weakness and would move from the knee area to the calves and hamstrings. Well here more recently, it just kept going down. I would go past 50% and just keep going down until I would have to stop and take a substantial rest. And even after the rest, I still wouldn't get back to my baseline until the next morning.
Well this week has been really good for me and it was even cememted further yesterday and today so far. I noticed I could walk further through the factory before the inevitable tingling and burning, and I noticed I would recover quicker. Now keep in mind that this has been my gradual decline over the past year and a half. I've never felt an aggressive attack, and once the stuff shows up, it has been there full time until last week. The camping trip I had was my low point. There were a few times that I just had to stop where I was and wait, then stumble back to camp and sit for the rest of the day. OK, enough history. Yesterday it was 90 degrees F and muggy. I am in charge of a very disorganized warehouse that me and my team are cleainng out to make room for a new job (yeah!). The warehouse was hell on me because it was literally jammed full of old machinery and special equipment. Anyone who has leg and balance issues knows how hard it is to maneuver through narrow areas; it just wipes you out. Well this place is one big maze, and it was very hot and muggy. My usual stay could only last a few minutes where I would just show my guys what had to be done, and then I would find a place to sit or my dizziness and weakness could cause me to fall and get hurt. There's nothing soft to land on in a used macinery warehouse.
Well we had 4 machines to 'dig out' and scrap. Not only did I stay with my guys, but I actually physically helped. I was pushing stuff out of the way, maneuvering into tight areas, and here's the kicker; I didn't get dizzy.......at all. And for me to push something out of the way is absolutely unheard of in that environment. Well I kept waiting for my legs to go wonky and I kept waiting for my balance to go, and I kept waiting for my eyesight to go, you get the picture. It never happened. No brain fog, no guaze in front of my eyes, no falling over shit. It was amazing. And to boot I was sweating like a whore in church. Being major league heat affected, that was amazing too. All week long I kept being able to do a bit more and a bit more. You guys have to understand that as short as two weeks ago I could not have done a 1/4 of what I did. Don't take me talking about just yesterday as this being this way for only one day; yesterday was just the pinnacle of my recent improvement.
Now here's where it gets really fun for me. I only woke up one time each of the last 4 nights, and before that, much less than usual. When I started noticing a trend I started to pee in a measuring cup. My voids for a long time have NEVER gone over 5-6 ounces, and 6 ounces was maybe once a month. Lat night I voided just over 8 oz.. I decided to keep track today also, and I've done that twice today.
The subtle changes may seem monumental the way I'm describing them because you have to remember, when stuff shows up with me, it's been permanent. I just had to keep lowering the bar of stuff I could do and how well things functioned. This last year and a half has been so discouraging because of all the talk with my Dr. about me probably being SP. Now I know Tovaxin isn't supposed to work on SP, and maybe I'm not SP and just have rreeaaalllly long relapses. Could be I guess, but just remember, I've never had a period where I regained function. Escpecially in the area of balance and dizziness. Granted my progression has been slow, but it's been constant. I'm not going to say "up until now" because it's all very new, and to me, not to be trusted yet. I could be going through a good patch. It's just funny though because I haven't had a patch of relief for quite some time. I can just imagine me coming back on here in a few weeks and saying everything fell back apart. I hope and pray this stuff is working on me, but I'll guess it's going to take some serious time for me to trust any of this. MS is a cruel, teasing bitch and she likes to screw with our hope.
I'm going to a graduation party tonight for my niece and I'm looking forward to it. That's been a long time coming to. I mean you have to do some family stuff, but when you know all it's going to do is make you feel bad, you start to dread obligations like that. My left leg would actually start to feel 'swollen' and rigid doing stuff like that. I mean you know the drill, you can't just show up and find the couch. So I would hang out with my brother in laws and stuff for a bit until my legs started killing me and my knee started buckling. I didn't even feel weak coming down the stairs this morning.
I don't know guys, I almost feel like me posting this is going to make it go away. I know it doesn't work like that, but shit, you don't want to take any chances, no matter how far fetched they may seem. Well if nothing else, I've had a great ten days or so and that's something I could not have said for years. There have been other subtle improvements, but I have to go shower now to get ready to go to a party. I can't believe I'm looking forward to going somewhere and potentially standing around, it's personally unbelievable.