Who's next for the 100 Day (+) Club?

A board to discuss Tcelna as a treatment for Multiple Sclerosis

Postby av8rgirl » Tue Jul 15, 2008 11:59 am

Lyon wrote:
JanethePain wrote: :P Now if this were a matter of DARK chocolate, the piccie would be oh-so-true. :lol:
Gosh, maybe dark chocolate has something to do with MS incidence, my wife loves it too..........

Bob


Me, too! Hmmm..maybe there's a trend here! Type A personalities and Dark Chocolate. Maybe we can get Godiva to sponsor a study! LOL!
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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Postby JanethePain » Tue Jul 15, 2008 12:14 pm

av8rgirl wrote:
Lyon wrote:
JanethePain wrote: :P Now if this were a matter of DARK chocolate, the piccie would be oh-so-true. :lol:
Gosh, maybe dark chocolate has something to do with MS incidence, my wife loves it too..........

Bob


Me, too! Hmmm..maybe there's a trend here! Type A personalities and Dark Chocolate. Maybe we can get Godiva to sponsor a study! LOL!


I'm all for that... with plenty of premium dark roast coffee to go with it! :)
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Postby av8rgirl » Tue Jul 15, 2008 12:22 pm

JanethePain wrote:
av8rgirl wrote:
Lyon wrote:
JanethePain wrote: :P Now if this were a matter of DARK chocolate, the piccie would be oh-so-true. :lol:
Gosh, maybe dark chocolate has something to do with MS incidence, my wife loves it too..........

Bob


Me, too! Hmmm..maybe there's a trend here! Type A personalities and Dark Chocolate. Maybe we can get Godiva to sponsor a study! LOL!


I'm all for that... with plenty of premium dark roast coffee to go with it! :)


Oh yes, and none of that unleaded stuff either!!!


We are sooo much alike!!
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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Postby Lyon » Tue Jul 15, 2008 12:28 pm

..
Last edited by Lyon on Wed Jun 22, 2011 6:49 pm, edited 1 time in total.
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Postby av8rgirl » Tue Jul 15, 2008 12:31 pm

Lyon wrote:
JanethePain wrote: I'm all for that... with plenty of premium dark roast coffee to go with it! :)
You just lost my wife on that one. She loves the smell of coffee but has never had a cup of it in her life.
Bob


She can sit and smell with us, Bob as long as she shares the chocolate! LOL!
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Postby Lyon » Tue Jul 15, 2008 2:00 pm

..
Last edited by Lyon on Wed Jun 22, 2011 6:49 pm, edited 1 time in total.
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Postby Sweetyhide » Tue Jul 22, 2008 8:42 am

Went to my 3rd appt in the rollover which is actually my first for the treatment shot. My vaccine wasn't there! It was in Indiana. I think it missed a flight or something.
Is anything going to go smooth for me?
Image
So hopefully it will be there in the morning and I go in to get it.

BTW~ I did all the other stuff - nuero exam and such. EDSS is steady at 2.5 (what it was all year).
And no Math thingy!
Image
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Postby JanethePain » Tue Jul 22, 2008 9:41 am

My 10 weeks are done tomorrow and nary a call in the works to get me scheduled for Shot # 1... :roll:
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Postby ssmme » Tue Jul 22, 2008 3:01 pm

My 10 weeks are done tomorrow and nary a call in the works to get me scheduled for Shot # 1...



Jane,
I'm still waiting too. Mike Tucker and I had our procurements within the same hour but he was dosed earlier this week and I'm still waiting. My clinic said that it must have taken longer for the mrtc's to multiply to the proper amount. They estimate mid-August at the earliest for me. That'll be 15 weeks if I get it then. I WANT MY FIX!!! Like Tom Petty says, "The waiting is the hardest part".
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Postby Lars » Wed Jul 23, 2008 3:35 pm

So, more than one person has commented on the lack of the "math thingy". My coordinator also told me it was over (although I haven't had a phase 3 visit yet), what I can't figure out is why Loobie says he takes it every time. Caution: Your protocol may vary.
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Postby hmtucker » Thu Jul 24, 2008 5:28 am

Lars wrote:So, more than one person has commented on the lack of the "math thingy".


What goes on at the clinic visits seems to be quite varied! Lew seems to do the full EDSS each time, I did a full EDSS for my first injection visit including the math test and then they told me that I wouldn't have to do another EDSS until the 6 month visit, the clinic told Marcia (who goes to the same clinic that I do) that she would do a full EDSS but no math test and Sweetyhide did a full EDSS but no math test! Nothing like having a consistent protocol!

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Postby av8rgirl » Thu Jul 24, 2008 6:06 am

JanethePain wrote:My 10 weeks are done tomorrow and nary a call in the works to get me scheduled for Shot # 1... :roll:


I hope you get scheduled soon. I agree, the hardest part is the waiting.

I see that Marcia has been scheduled for her first injection! Woohoo! Congratulations!

The last article published sure looks promising. Let's keep going everyone!

Lew, how are you doing?
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Postby av8rgirl » Thu Jul 24, 2008 6:08 am

Sweetyhide wrote:Went to my 3rd appt in the rollover which is actually my first for the treatment shot. My vaccine wasn't there! It was in Indiana. I think it missed a flight or something.
Is anything going to go smooth for me?
Image
So hopefully it will be there in the morning and I go in to get it.

BTW~ I did all the other stuff - nuero exam and such. EDSS is steady at 2.5 (what it was all year).
And no Math thingy!
Image


Congratulations Sweety! So happy to hear you have gotten this far! It's so good to see this trial progressing! I hope you got your shot.
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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Postby JanethePain » Mon Aug 04, 2008 3:32 am

av8rgirl wrote:
JanethePain wrote:
av8rgirl wrote:
Lyon wrote:
JanethePain wrote: :P Now if this were a matter of DARK chocolate, the piccie would be oh-so-true. :lol:
Gosh, maybe dark chocolate has something to do with MS incidence, my wife loves it too..........

Bob


Me, too! Hmmm..maybe there's a trend here! Type A personalities and Dark Chocolate. Maybe we can get Godiva to sponsor a study! LOL!


I'm all for that... with plenty of premium dark roast coffee to go with it! :)


Oh yes, and none of that unleaded stuff either!!!


We are sooo much alike!!


My # 2 neuro (UNfired, very nice guy) once remarked that MS has a tendency to hit VERY strong, very intelligent women... I DO think there's a trend! :D
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Postby Lyon » Mon Aug 04, 2008 11:10 am

..
Last edited by Lyon on Wed Jun 22, 2011 6:49 pm, edited 1 time in total.
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